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护理中基于基因组学的医疗保健:将遗传学融入护理知识体系的双向方法。

Genomic-based health care in nursing: a bidirectional approach to bringing genetics into nursing's body of knowledge.

作者信息

Lea Dale Halsey, Feetham Suzanne L, Monsen Rita Black

机构信息

Southern Maine Genetics Service, Foundation for Blood Research, Scarborough, ME 04070, USA.

出版信息

J Prof Nurs. 2002 May-Jun;18(3):120-9. doi: 10.1053/jpnu.2002.124487.

Abstract

Nurses can expect to become partners with patients and their families as genomic-based health care brings decisions involving gene-based diagnostics and therapeutics into commonplace practice. All health professionals need genetic literacy to continue competence in clinical practice in the future. This article explores the efforts nursing has undertaken during the past decade to integrate human and clinical genetics into practice and scholarship. Genetics nursing education literature in the second half of the 20th century was analyzed. A focused survey of 15 genetics nurses and nursing leaders regarding key national initiatives, genetics research training programs, and genetics education models was conducted. Nursing has taken a bidirectional approach (through grass roots and top-down initiatives) to implementing change and advancing genetics in nursing practice, research, and education. For optimal leadership in genetics education for nursing and other disciplines, bidirectional efforts must continue and concentrate on bringing genetics into clinical practice and scholarship as genomic-based health care spreads worldwide. Evidence of nursing's interdisciplinary leadership is recognized. Recommendations and strategies for continued nursing leadership and programs that build on previous work are presented.

摘要

随着基于基因组的医疗保健将涉及基因诊断和治疗的决策纳入日常实践,护士有望成为患者及其家属的合作伙伴。所有卫生专业人员都需要具备基因素养,以便在未来继续胜任临床实践。本文探讨了护理行业在过去十年中为将人类遗传学和临床遗传学融入实践与学术研究所做的努力。对20世纪下半叶的遗传学护理教育文献进行了分析。针对15位遗传学护士和护理领导者开展了一项重点调查,内容涉及关键的国家倡议、遗传学研究培训项目以及遗传学教育模式。护理行业采取了双向方法(通过基层和自上而下的倡议)来实施变革并推动护理实践、研究和教育中的遗传学发展。随着基于基因组的医疗保健在全球范围内普及,为了在护理及其他学科的遗传学教育中实现最佳领导,必须继续进行双向努力,并集中精力将遗传学融入临床实践和学术研究。护理行业跨学科领导的证据得到了认可。本文提出了关于护理行业持续发挥领导作用的建议和策略,以及基于先前工作的项目。

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