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白血病和淋巴瘤患者的个体生活质量。

Individual quality of life in patients with leukaemia and lymphoma.

作者信息

Montgomery Charles, Pocock Marilyn, Titley Kirsten, Lloyd Keith

机构信息

Department of Mental Health, University of Exeter, Wonford House Hospital, Exeter, UK.

出版信息

Psychooncology. 2002 May-Jun;11(3):239-43. doi: 10.1002/pon.557.

Abstract

With increasingly sophisticated chemotherapy regimes being prescribed the quality of life of cancer patients has become a key outcome measure. Little has been reported concerning the experience of patients with haematological malignancy receiving chemotherapy. The objective of this study was to evaluate the clinical usefulness of a novel quality of life measure-the Schedule for the Evaluation of Individual Quality of Life-Direct Weighting (SEIQoL-DW) in a sample of patients with either leukaemia or lymphoma. Fifty-one patients from the haematology clinic and in-patient unit at The Royal Devon and Exeter Hospital completed the SEIQoL-DW; in addition, each patient completed the Hospital Anxiety and Depression Scale (HADS) and a ten item questionnaire covering aspects of their treatment and satisfaction with information provided. The practical application of the SEIQoL-DW is described and two patients quality of life profiles are illustrated for comparison. The relationship between quality of life, satisfaction with information provided and psychological distress as measured by the HADS is discussed.

摘要

随着越来越复杂的化疗方案被采用,癌症患者的生活质量已成为关键的疗效衡量指标。关于血液系统恶性肿瘤患者接受化疗的体验,此前报道甚少。本研究的目的是评估一种新型生活质量测量工具——个体生活质量评估量表直接加权法(SEIQoL-DW)在白血病或淋巴瘤患者样本中的临床实用性。来自皇家德文郡和埃克塞特医院血液科门诊及住院部的51名患者完成了SEIQoL-DW量表;此外,每位患者还完成了医院焦虑抑郁量表(HADS)以及一份涵盖其治疗方面和对所提供信息满意度的十项问卷。文中描述了SEIQoL-DW的实际应用,并举例说明了两名患者的生活质量概况以供比较。还讨论了生活质量、对所提供信息的满意度以及通过HADS测量的心理困扰之间的关系。

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