Fallowfield L J, Jenkins V A, Beveridge H A
Psychosocial Oncology Group (Cancer Research UK), School of Biological Sciences, University of Sussex, Brighton, UK.
Palliat Med. 2002 Jul;16(4):297-303. doi: 10.1191/0269216302pm575oa.
Healthcare professionals often censor their information giving to patients in an attempt to protect them from potentially hurtful, sad or bad news. There is a commonly expressed belief that what people do not know does not harm them. Analysis of doctor and nurse/patient interactions reveals that this well-intentioned but misguided assumption about human behaviour is present at all stages of cancer care. Less than honest disclosure is seen from the moment that a patient reports symptoms, to the confirmation of diagnosis, during discussions about the therapeutic benefits of treatment, at relapse and terminal illness. This desire to shield patients from the reality of their situation usually creates even greater difficulties for patients, their relatives and friends and other members of the healthcare team. Although the motivation behind economy with the truth is often well meant, a conspiracy of silence usually results in a heightened state of fear, anxiety and confusion--not one of calm and equanimity. Ambiguous or deliberately misleading information may afford short-term benefits while things continue to go well, but denies individuals and their families opportunities to reorganize and adapt their lives towards the attainment of more achievable goals, realistic hopes and aspirations. In this paper, some examples and consequences of accidental, deliberate, if well-meaning, attempts to disguise the truth from patients, taken verbatim from interviews, are given, together with cases of unintentional deception or misunderstandings created by the use of ambiguous language. We also provide evidence from research studies showing that although truth hurts, deceit may well hurt more. 'I think the best physician is the one who has the providence to tell to the patients according to his knowledge the present situation, what has happened before, and what is going to happen in the future' (Hippocrates).
医护人员常常审查他们向患者提供的信息,试图保护患者免受潜在的伤害性、悲伤或坏消息的影响。人们普遍认为,不知道的事情不会对自己造成伤害。对医生与护士/患者互动的分析表明,这种关于人类行为的善意但错误的假设在癌症护理的各个阶段都存在。从患者报告症状的那一刻起,到确诊、讨论治疗的益处、复发和绝症期间,都存在不够坦诚的披露。这种想要保护患者不面对其真实情况的愿望,通常会给患者、他们的亲属和朋友以及医护团队的其他成员带来更大的困难。尽管隐瞒真相背后的动机往往是善意的,但沉默的共谋通常会导致恐惧、焦虑和困惑加剧,而不是平静与镇定。模棱两可或故意误导的信息在事情进展顺利时可能会带来短期好处,但却剥夺了个人及其家人为实现更可达成的目标、现实的希望和抱负而重新组织和调整生活的机会。在本文中,给出了一些直接取自访谈的、偶然的、故意的(即使是善意的)向患者隐瞒真相的例子及其后果,以及使用模棱两可的语言造成的无意欺骗或误解的案例。我们还提供了研究证据表明,虽然真相令人痛苦,但欺骗可能更伤人。“我认为最好的医生是那个有能力根据自己的知识向患者讲述当前情况、之前发生的事情以及未来将会发生的事情的人”(希波克拉底)。