Hays Ron D, Hahn Harlan, Marshall Grant
UCLA Department of General Internal Medicine and Health Services Research and Department of Public Health, Los Angeles, CA 90095, USA.
Arch Phys Med Rehabil. 2002 Dec;83(12 Suppl 2):S4-9. doi: 10.1053/apmr.2002.36837.
This article evaluates the appropriateness of existing approaches to the assessment of health-related quality of life (HRQOL) for persons with disabilities. We compare the conceptual model of HRQOL from the Medical Outcomes Study with the World Health Organization's International Classification of Functioning, Disability and Health. In addition, we examine the attitudes toward disease "burden" that arise from these 2 models. We note how values or the importance attached to domains of health can change with fluctuations in physical health. Further, we summarize arguments in favor of developing targeted measures of persons with disabilities. Finally, we discuss some methodologic issues in assessing physical functioning, attributions to health versus disability, and mode of administration. We conclude that users of "standard" HRQOL measures need to be aware of their limitations for assessing persons with disabilities.
本文评估了现有方法用于评估残疾人健康相关生活质量（HRQOL）的适用性。我们将医学结局研究中的HRQOL概念模型与世界卫生组织的《国际功能、残疾和健康分类》进行了比较。此外，我们考察了这两种模型所产生的对疾病“负担”的态度。我们注意到，随着身体健康状况的波动，人们对健康领域的重视程度或价值观可能会发生变化。进一步地，我们总结了支持开发针对残疾人的针对性测量方法的观点。最后，我们讨论了在评估身体功能、健康与残疾的归因以及管理方式方面的一些方法学问题。我们得出结论，“标准”HRQOL测量方法的使用者需要意识到这些方法在评估残疾人时的局限性。
