University of Utah College of Nursing, Salt Lake City, UT, USA.
Department of Occupational and Recreational Therapies, College of Health, University of Utah, Salt Lake City, UT, USA.
J Appl Res Intellect Disabil. 2021 May;34(3):877-890. doi: 10.1111/jar.12831. Epub 2021 Jan 31.
To encourage self-determination and address health disparities among persons with intellectual and developmental disabilities, clinicians and researchers rely on self-reported measures like health-related quality of life (HRQoL). This study evaluated the psychometric properties of a theory-driven self-reported HRQoL measure for adults requiring mild to moderate support related to intellectual and developmental disabilities.
224 volunteers completed 42 quality of life items developed with extensive input from persons with intellectual and developmental disabilities, family members/caregivers, and providers. The 5-point Likert scale format with visual images of fluid-filled cups represented the range of responses.
Exploratory and Unrestricted Factor Analyses yielded 16 HRQoL items with 4 subscales: Functional Well-Being, Emotional Well-Being, Social Well-Being, and Healthy Decision-making. The HRQoL-IDD explained 62.8% of variance, had satisfactory internal consistency (0.73-0.83), stability of reponses, and reading level (2nd grade, ages 7-8).
The HRQoL-IDD is a promising measure of self-reported HRQoL for use in community-based settings for persons requiring mild to moderate support related to intellectual and developmental disabilities.
为了鼓励智障和发育障碍人士的自主性并解决其健康差异，临床医生和研究人员依赖自我报告的措施，如健康相关生活质量（HRQoL）。本研究评估了一种理论驱动的自我报告 HRQoL 测量工具在需要轻度到中度智力和发育障碍相关支持的成年人中的心理测量特性。
224 名志愿者完成了 42 项与智力和发育障碍人士、家庭成员/照顾者和提供者广泛投入相关的生活质量项目。5 点李克特量表格式，带有充满液体的杯子的视觉图像代表了反应范围。
探索性和无限制因子分析产生了 16 个 HRQoL 项目，有 4 个分量表：功能健康、情绪健康、社会健康和健康决策。HRQoL-IDD 解释了 62.8%的方差，具有令人满意的内部一致性（0.73-0.83）、反应稳定性和阅读水平（2 年级，年龄 7-8 岁）。
HRQoL-IDD 是一种有前途的自我报告 HRQoL 测量工具，可用于需要轻度到中度智力和发育障碍相关支持的社区环境中。
