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在没有预后信息的情况下做出医疗决策:脑外伤病房的生活

Making health care decisions without a prognosis: life in a brain trauma unit.

作者信息

Martone M

出版信息

Annu Soc Christ Ethics. 2000;20:309-27.

PMID:12528705
Abstract

When the author's daughter was hit by a car and remained unconscious for seven months, she found that there were certain factors where traditional ethical theory was not sufficiently nuanced to guide her practical decision making in regard to her daughter's health care. This article concentrates on three of those factors. They are: (1) no reliable prognosis can be offered for many brain-injured individuals; (2) a patient's age and the relationship between the patient and the caregiver affect the context of caring; and (3) there are severe difficulties in obtaining and sustaining chronic care and accessing scarce resources.

摘要

当作者的女儿被车撞后昏迷了七个月时,她发现某些因素使得传统伦理理论在指导她关于女儿医疗护理的实际决策时不够细致入微。本文着重探讨其中三个因素。它们是:(1)对于许多脑损伤患者无法给出可靠的预后;(2)患者的年龄以及患者与护理者之间的关系会影响护理的背景;(3)在获得和维持长期护理以及获取稀缺资源方面存在严重困难。

相似文献

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Making health care decisions without a prognosis: life in a brain trauma unit.在没有预后信息的情况下做出医疗决策:脑外伤病房的生活
Annu Soc Christ Ethics. 2000;20:309-27.
2
The implications of caring for the injured brain.
Am J Bioeth. 2008 Sep;8(9):35-6. doi: 10.1080/15265160802412684.
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Shattering the neutral surrogate myth in end-of-life decisionmaking: Terri Schiavo and her family.打破临终决策中中立代理人的神话:特丽·夏沃及其家人。
Cumberland Law Rev. 2004;35(3):575-95.
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Medical decision making in the vegetative state: withdrawal of nutrition and hydration.植物人状态下的医疗决策:停止营养和水分供给。
NeuroRehabilitation. 2004;19(4):299-304.
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Brain death, vegetative state and the RUB: how does one arrive at the decision that a person's life is no longer worth living?脑死亡、植物人状态与无用性标准:一个人如何做出其生命不再值得延续的决定?
Issues Med Ethics. 1999 Apr-Jun;7(2):54-5.
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Health care utilization and needs after pediatric traumatic brain injury.小儿创伤性脑损伤后的医疗保健利用情况与需求
Pediatrics. 2006 Apr;117(4):e663-74. doi: 10.1542/peds.2005-1892. Epub 2006 Mar 13.
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End-of-life decisions and respiratory disease.临终决策与呼吸系统疾病
Nurs Times. 2006;102(7):56, 59, 61.
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Memento ... life imitates art: the request for an ethics consultation.《记忆碎片》……生活模仿艺术:伦理咨询的请求。
J Clin Ethics. 2007 Fall;18(3):247-51.
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The window of opportunity: decision theory and the timing of prognostic tests for newborn infants.机会之窗:决策理论与新生儿预后测试的时机
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