Karlawish Jason H T
University of Pennsylvania, USA.
LDI Issue Brief. 2002 Jun;7(8):1-4.
About four million Americans currently live with Alzheimer's disease (AD) or related forms of dementia. Because the disease process impairs language, insight, and judgment, family members become "caregivers." These caregivers, either in part or in full, often make decisions on patients' behalf. This Issue Brief summarizes a series of studies that describe how caregivers make decisions for AD patients, and caregiver perspectives on the quality of life for relatives with AD.
目前约有400万美国人患有阿尔茨海默病(AD)或相关形式的痴呆症。由于疾病进程会损害语言、洞察力和判断力,家庭成员成为了“照顾者”。这些照顾者常常部分或全部代表患者做出决定。本问题简报总结了一系列研究,这些研究描述了照顾者如何为AD患者做决定,以及照顾者对AD亲属生活质量的看法。