Marshall Elaine Sorensen, Olsen Susanne Frost, Mandleco Barbara L, Dyches Tina Taylor, Allred Keith W, Sansom Nancy
College of Nursing, Brigham Young University, Provo, Utah, USA.
Qual Health Res. 2003 Jan;13(1):57-76. doi: 10.1177/1049732302239411.
The presence of a child with disabilities elicits a variety of stress demands on the family. Religion is recognized as a powerful personal, family, and cultural variable. However, little is known about the influence of religion in dealing with disability among families within particular religious groups. This descriptive study explored themes of spiritual belief and religious support among families of the Church of Jesus Christ of Latter-Day Saints (LDS, or Mormon) with a child with developmental disabilities. Parents shared perspectives of meaning that emerged from experiences with religion and family beliefs perceived to be unique. The core theme, "This is a Spiritual Experience," provides the foundation for a descriptive model that depicts aspects of finding meaning and perceived transcendence.
家中有残疾儿童会给家庭带来各种压力。宗教被认为是一个强大的个人、家庭和文化变量。然而，对于特定宗教群体中宗教在家庭应对残疾方面的影响，我们知之甚少。这项描述性研究探讨了耶稣基督后期圣徒教会（LDS，即摩门教）中有发育障碍儿童的家庭的精神信仰主题和宗教支持。家长们分享了从宗教经历和被视为独特的家庭信仰中产生的意义观点。核心主题“这是一次精神体验”为一个描述性模型奠定了基础，该模型描绘了寻找意义和感知超越的各个方面。
