Grossoehme Daniel H, Ragsdale Judy, Wooldridge Jamie L, Cotton Sian, Seid Michael
Department of Pastoral Care, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio 45229, USA.
J Health Care Chaplain. 2010;16(3-4):95-108. doi: 10.1080/08854726.2010.480833.
The diagnosis of a child's life-shortening disease leads many American parents to utilize religious beliefs. Models relating religious constructs to health have been proposed. Still lacking are inductive models based on parent experience. The specific aims of this study were: 1. develop a grounded theory of parental use of religion in the year after diagnosis; 2. describe whether parents understand a relationship between their religious beliefs and their follow-through with their child's at-home treatment regimen. Fifteen parent interviews were analyzed using grounded theory method. Parents used religion to make meaning of their child's cystic fibrosis (CF) diagnosis. Parents imagined God as active, benevolent, and interventionist; found hope in their beliefs; felt supported by God; and related religion to their motivation to adhere to their child's treatment plan. Religious beliefs are clinically significant in working with many parents of children recently diagnosed with CF. Interventions that improve adherence to treatment may be enhanced by including religious aspects.
对患有缩短生命疾病的儿童进行诊断后,许多美国家长会借助宗教信仰。已有人提出将宗教概念与健康联系起来的模型。然而,基于家长经历的归纳模型仍很欠缺。本研究的具体目标如下:1. 构建一种关于家长在诊断后一年内运用宗教的扎根理论;2. 描述家长是否理解其宗教信仰与坚持孩子在家治疗方案之间的关系。采用扎根理论方法对15位家长的访谈进行了分析。家长们借助宗教来理解孩子的囊性纤维化(CF)诊断。家长们将上帝想象为积极、仁慈且会进行干预的;在信仰中找到希望;感受到上帝的支持;并将宗教与坚持孩子治疗计划的动机联系起来。在与许多最近被诊断出患有CF的孩子的家长打交道时,宗教信仰具有临床意义。纳入宗教方面的内容可能会增强改善治疗依从性的干预措施。