日本交界性和营养不良性大疱性表皮松解症诊断与治疗指南。 - Suppr

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超能文献

Japanese guidelines for diagnosis and treatment of junctional and dystrophic epidermolysis bullosa.

作者信息

Tamai Katsuto, Hashimoto Isao, Hanada Katsumi, Ikeda Shigaku, Imamura Sadao, Ogawa Hideoki

机构信息

Hirosaki University School of Medicine, Hirosaki, Japan.

出版信息

Arch Dermatol Res. 2003 Apr;295 Suppl 1:S24-8. doi: 10.1007/s00403-002-0379-y. Epub 2003 Mar 11.

DOI:10.1007/s00403-002-0379-y

PMID:12677429

Abstract

摘要

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引用本文的文献

A comparison study of outcome measures for epidermolysis bullosa: Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI) and the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa (iscorEB).大疱性表皮松解症结局指标的比较研究：大疱性表皮松解症疾病活动与瘢痕指数（EBDASI）和大疱性表皮松解症研究临床结局评分工具（iscorEB）。

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A review of scoring systems for ocular involvement in chronic cutaneous bullous diseases.慢性皮肤大疱性疾病眼受累评分系统的研究进展。

Orphanet J Rare Dis. 2018 May 22;13(1):83. doi: 10.1186/s13023-018-0823-5.

The Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI): grading disease severity and assessing responsiveness to clinical change in epidermolysis bullosa.大疱性表皮松解症疾病活动与瘢痕形成指数（EBDASI）：评估大疱性表皮松解症的疾病严重程度及对临床变化的反应性

J Eur Acad Dermatol Venereol. 2017 Apr;31(4):692-698. doi: 10.1111/jdv.13953. Epub 2016 Oct 3.

Prevalence of specific anti-skin autoantibodies in a cohort of patients with inherited epidermolysis bullosa.遗传性大疱性表皮松解症患者队列中特定皮肤自身抗体的流行率。

Orphanet J Rare Dis. 2013 Sep 4;8:132. doi: 10.1186/1750-1172-8-132.

Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders.先天性大疱性表皮松解症治疗不确定性的优先级排序：研究应该指向哪里？极罕见疾病优先级设定伙伴关系的一个范例。

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