Prpic I, Korotaj Z, Vlasic-Cicvaric I, Paucic-Kirincic E, Valerjev A, Tomac V
Department of Paediatrics "Kantrida," University Hospital Centre, Istarska 43, 51 000 Rijeka, Croatia.
Epilepsy Behav. 2003 Apr;4(2):142-5. doi: 10.1016/s1525-5050(03)00025-8.
The purpose of this study was to investigate primary school teachers' opinions or knowledge about children with epilepsy. Two hundred and sixteen teachers were involved. The results reveal that teachers do not have an accurate conception of the capabilities of children with epilepsy and that those beliefs differ from teacher to teacher. Nearly half of the teachers believe that children with epilepsy differ from healthy children in their behavior. The majority of teachers (60%) receive information on the child's disease not from the parents, but from other sources. One-third of teachers do not feel confident in their work in children with epilepsy. A great majority (91.2%) of teachers desire additional information and education about epilepsy. Primary school teachers who work with children with epilepsy have inconsistent knowledge of the capabilities and behavior of, and an inadequate way of working with, children with epilepsy. Therefore, they are eager to get more information on epilepsy. It is the duty of the medical team to offer teachers the necessary information, so that the approach to work with, and life quality of children with epilepsy can be improved. Our results are concordant with similar studies performed in various countries within the last 30 years. It is proved that epilepsy as a disease has a very similar social effect on the affected person with no regard for cultural or social background, implying that the stigma of epilepsy is still a very powerful factor in the formation of general opinions about the disease.
本研究的目的是调查小学教师对癫痫患儿的看法或了解程度。共有216名教师参与。结果显示，教师们对癫痫患儿的能力没有准确的概念，而且这些看法因人而异。近一半的教师认为癫痫患儿在行为上与健康儿童不同。大多数教师（60%）获取有关患儿疾病的信息并非来自家长，而是其他来源。三分之一的教师对其与癫痫患儿相关的工作缺乏信心。绝大多数（91.2%）教师希望获得更多关于癫痫的信息和教育。与癫痫患儿打交道的小学教师对癫痫患儿的能力、行为以及与之打交道的方式缺乏一致的认识。因此，他们渴望获取更多关于癫痫的信息。医疗团队有责任为教师提供必要的信息，以便改善对癫痫患儿的工作方式和他们的生活质量。我们的结果与过去30年在不同国家进行的类似研究一致。事实证明，癫痫作为一种疾病，无论文化或社会背景如何，对患者都有非常相似的社会影响，这意味着癫痫的污名化仍然是形成对该疾病普遍看法的一个非常强大的因素。
