Cox Helen, Henderson Lorraine, Wood Ros, Cagliarini Glenda
Deakin University/Epworth Hospital, School of Nursing, 221 Burwood Highway, Richmond, Vic, Australia.
Complement Ther Nurs Midwifery. 2003 May;9(2):62-8. doi: 10.1016/S1353-6117(02)00138-5.
This paper describes aspects of a study that was conducted to determine women's needs for information related to laparoscopy for endometriosis. Sixty-one women attended focus groups, during which they described endometriosis as a disease of multiple losses: of relationships, of career and of a sense of self-worth. The women indicated that the pathway to diagnosis and treatment had been long and unnecessarily difficult. Many women said that they had reached a point where they decided enough was enough: the medical merry-go-round had to finish. They had to become assertive, take control and decide for themselves how they were going to manage their disease and their quality of life. For all but one woman in the study, complementary therapies were vital. For some women, alternative therapies had replaced allopathic medicine completely. Complementary/alternative therapies were a mechanism for regaining control.
本文描述了一项研究的相关方面，该研究旨在确定女性对于子宫内膜异位症腹腔镜检查相关信息的需求。61名女性参加了焦点小组，在小组中她们将子宫内膜异位症描述为一种带来多重损失的疾病：人际关系、职业以及自我价值感方面的损失。这些女性表示，诊断和治疗的过程漫长且不必要地艰难。许多女性说她们已经到了忍无可忍的地步：这场医疗“旋转木马”必须停止。她们必须变得坚定自信，掌控局面，并自行决定如何应对疾病以及改善生活质量。在该研究中，除一名女性外，其他所有女性都认为辅助疗法至关重要。对一些女性而言，替代疗法已完全取代了传统医学。辅助/替代疗法是重新获得控制权的一种方式。
