Ponsford Jennie, Olver John, Ponsford Michael, Nelms Robyn
Monash-Epworth Rehabilitation Research Centre, Epworth Hospital, Melbourne, Victoria, Australia.
Brain Inj. 2003 Jun;17(6):453-68. doi: 10.1080/0269905031000070143.
The present study aimed to examine long-term family and emotional adjustment in close relatives of individuals with TBI, who had access to comprehensive rehabilitation services. It also examined the relative influence thereon of factors including injury severity, handicap and cognitive and behavioural changes in the injured person, relationship with the injured person and caregiver status.
Participants were 143 TBI individuals and their close relatives. They completed the Family Assessment Device (FAD), Leeds Scales of Anxiety and Depression, Structured Outcome Questionnaire, CHART, SIP Psychosocial Dimension and Novaco Anger Control Questionnaire 2-5 years post-injury.
Results showed that families were, on average, functioning in the normal range on the FAD. Anxiety and depression were more likely to be present in those responsible for care of their injured relative. There were no differences between spouses and parents. Presence of cognitive, behavioural and emotional changes was the strongest predictor of anxiety and depression in relatives and of unhealthy family functioning.
Every attempt should be made to develop models of long-term support and care that alleviate these sources of burden on relatives.
本研究旨在调查脑外伤患者的近亲在获得全面康复服务后的长期家庭和情绪适应情况。研究还考察了包括损伤严重程度、残疾情况、伤者的认知和行为变化、与伤者的关系以及照顾者身份等因素对上述情况的相对影响。
参与者为143名脑外伤患者及其近亲。他们在受伤后2至5年完成了家庭评估量表(FAD)、利兹焦虑和抑郁量表、结构化结果问卷、CHART、SIP心理社会维度量表以及诺瓦科愤怒控制问卷。
结果显示,家庭在FAD上的平均功能处于正常范围。照顾受伤亲属的人更有可能出现焦虑和抑郁情绪。配偶和父母之间没有差异。认知、行为和情绪变化的存在是亲属焦虑和抑郁以及家庭功能不健康的最强预测因素。
应尽一切努力开发长期支持和护理模式,以减轻亲属的这些负担来源。