van Riper M, Pridham K, Ryff C
Matern Child Nurs J. 1992 Spring;20(1):21-39.
The birth of a child with Down syndrome is a challenge to parental and societal expectations. Feelings of shock, sadness, confusion, denial, fear, anger, guilt, and helplessness may be evoked. In this paper, the impact of stigma on individuals with Down syndrome and their families will be reviewed to clarify why interactions between parents and others need to be explored. Next, the central concepts important to the symbolic interactionist perspective will be reviewed. Then, qualitative data from an ongoing study of 90 parents of children with Down syndrome (ages 3 months to 18 years) will be presented to illustrate how symbolic interactionism can be applied to the to care of children with Down syndrome and their families. Finally, implications for nurses working with families that include a child with Down syndrome will be addressed.
唐氏综合征患儿的出生对父母的期望以及社会期望都是一种挑战。这可能会引发震惊、悲伤、困惑、否认、恐惧、愤怒、内疚和无助等情绪。在本文中，将回顾污名对唐氏综合征患者及其家庭的影响，以阐明为何需要探讨父母与他人之间的互动。接下来，将回顾对符号互动主义观点至关重要的核心概念。然后，将呈现一项正在进行的对90名唐氏综合征患儿（年龄在3个月至18岁之间）父母的研究中的定性数据，以说明符号互动主义如何应用于唐氏综合征患儿及其家庭的护理。最后，将探讨对照顾患有唐氏综合征患儿家庭的护士的启示。
