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美国自愿性和强制性数据库及登记处的可靠性。

Reliability of voluntary and compulsory databases and registries in the United States.

作者信息

Hanto Douglas W

机构信息

Department of Surgery, Beth Israel Deaconess Medical Center and Harvard Medical School, Boston, MA 02215, USA.

出版信息

Transplantation. 2003 Jun 27;75(12):2162-4. doi: 10.1097/01.TP.0000080273.83998.C4.

DOI:10.1097/01.TP.0000080273.83998.C4
PMID:12829937
Abstract

In the United States, there are several transplant registries and databases. Most are voluntary and may be organ specific, disease or condition specific, organ and disease specific, or specific for a certain demographic patient group. There is one compulsory and comprehensive registry, the Scientific Registry of Transplant Recipients (SRTR). These databases all have strengths and weaknesses. There is no doubt, however, that they contribute significantly to the scientific analyses of transplant outcomes and complications and provide important data through publications and presentations that can improve patient care and influence local, regional, and national transplant policies. Audits can and should be performed to guarantee the reliability of the data and accuracy of the conclusions drawn from this data as was done by the European Liver Transplant Registry.

摘要

在美国,有多个移植登记处和数据库。大多数是自愿性的,可能针对特定器官、特定疾病或病症、特定器官和疾病,或针对特定的人口统计学患者群体。有一个强制性的综合登记处,即移植受者科学登记处(SRTR)。这些数据库都有优缺点。然而,毫无疑问,它们对移植结果和并发症的科学分析做出了重大贡献,并通过出版物和报告提供重要数据,这些数据可以改善患者护理并影响地方、区域和国家的移植政策。应该像欧洲肝脏移植登记处那样进行审核,以保证数据的可靠性以及从这些数据得出的结论的准确性。

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1
Reliability of voluntary and compulsory databases and registries in the United States.美国自愿性和强制性数据库及登记处的可靠性。
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Report from the National Transplantation Pregnancy Registry (NTPR): outcomes of pregnancy after transplantation.美国国家移植妊娠登记处(NTPR)报告:移植后妊娠结局
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Scientific Registry of Transplant Recipients: collecting, analyzing, and reporting data on transplantation in the United States.美国移植受者科学登记处:收集、分析和报告美国移植数据。
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The making of a pan-European organ transplant registry.泛欧器官移植登记系统的建立。
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引用本文的文献

1
Utility in Treating Kidney Failure in End-Stage Liver Disease With Simultaneous Liver-Kidney Transplantation.肝肾联合移植治疗终末期肝病合并肾衰竭的效用
Transplantation. 2017 May;101(5):1111-1119. doi: 10.1097/TP.0000000000001491.
2
Simultaneous liver-kidney transplantation or liver transplantation alone for patients in need of liver transplantation with renal dysfunction.对于需要肝移植且伴有肾功能不全的患者,进行肝肾联合移植或单纯肝移植。
Curr Opin Organ Transplant. 2016 Apr;21(2):194-200. doi: 10.1097/MOT.0000000000000299.
3
Decreased post-transplant survival among heart transplant recipients with pre-transplant hepatitis C virus positivity.
移植前丙型肝炎病毒阳性的心脏移植受者移植后生存率降低。
J Heart Lung Transplant. 2011 Nov;30(11):1266-74. doi: 10.1016/j.healun.2011.06.003. Epub 2011 Jul 20.
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Discordance between the patient's and surgeon's perception of complications following hernia surgery.患者与外科医生对疝气手术后并发症的认知差异。
Hernia. 2005 May;9(2):145-9. doi: 10.1007/s10029-004-0310-x. Epub 2005 Feb 10.