Ream Emma, Browne Natasha, Glaus Agnes, Knipping Cornelia, Frei Irena Anna
Florence Nightingale School of Nursing and Midwifery, King's College, James Clerk Maxwell Building, Waterloo Road, London SEI 8WA, UK.
Eur J Oncol Nurs. 2003 Jun;7(2):99-109. doi: 10.1016/s1462-3889(03)00003-6.
Cancer-related fatigue is a symptom with great implications for the quality of life of those that experience it. It is regarded as one of the most distressing symptoms that people with cancer develop. Its aetiology is complex, and although the mechanisms underlying fatigue have not been fully clarified it is evident that it is exacerbated by treatments intended to cure or palliate the disease. Patients at risk of cancer-related fatigue need access to information that will enable them to manage it effectively. There are a growing number of materials available to patients in different European countries on this topic, but it is unclear how useful patients find these. This study was undertaken to explore this through conducting focus groups with patients in the United Kingdom and Switzerland. One focus group was conducted in each country. Findings from these determined that individuals voiced common concerns: fatigue had not been addressed in the clinical setting - individuals surmised why this occurred; participants had not accessed materials on cancer-related fatigue previously; they made recommendations for future resources for patients. However, what was evident was that unless patients can access materials on this topic, their quality becomes purely an academic issue.
癌症相关疲劳是一种对经历此症状的人的生活质量有重大影响的症状。它被视为癌症患者出现的最令人痛苦的症状之一。其病因复杂，尽管疲劳背后的机制尚未完全阐明，但显然用于治愈或缓解疾病的治疗会加剧疲劳。有患癌症相关疲劳风险的患者需要获取能使他们有效应对该症状的信息。在不同欧洲国家，有越来越多关于这一主题的资料可供患者使用，但尚不清楚患者觉得这些资料有多大用处。本研究旨在通过与英国和瑞士的患者进行焦点小组访谈来探讨这一问题。在每个国家都进行了一次焦点小组访谈。这些访谈的结果表明，个体表达了共同的担忧：临床环境中未处理疲劳——个体猜测其原因；参与者之前未获取过关于癌症相关疲劳的资料；他们对未来面向患者的资源提出了建议。然而，显而易见的是，除非患者能够获取关于这一主题的资料，否则其质量纯粹只是一个学术问题。
