Piredda Michela, De Marinis Maria Grazia, Rocci Laura, Gualandi Raffaella, Tartaglini Daniela, Ream Emma
Università Campus Bio-Medico, Corso di Laurea per Infermieri, Via Longoni, 69, 00155, Roma, Italy.
Università Campus Bio-Medico, Via Longoni, 69, 00155, Roma, Italy.
Support Care Cancer. 2007 Nov;15(11):1231-1241. doi: 10.1007/s00520-007-0240-0. Epub 2007 Mar 21.
Interest in cancer-related fatigue has been growing over the last two decades and efforts have been dedicated to investigate this topic. However, research addressing the adequacy of educational resources for patients with this distressing and common symptom is lacking. Only one study has been undertaken and this explored Swiss and British patients' views.
The current study replicated and extended the study previously undertaken in the United Kingdom (UK) and Switzerland. It sought views on the adequacy of materials on cancer-related fatigue available to patients with cancer living in Italy, and to determine the educational preferences and needs of Italian patients with cancer-related fatigue. These were attained through conduct of two focus groups. One was undertaken with Italian patients and the other with a group of Italian nurses.
Findings from this study supported patients' desire for timely, accurate and individualised information. Barriers to effective fatigue education included the limited dialogue regarding fatigue initiated in clinical settings. It appeared that nurses and patients held different priorities in symptom management. Further, it was acknowledged that there was often insufficient time to inform patients adequately about fatigue. Participants considered written materials as helpful complements to oral information, thus supporting the provision of information in both forms. However, it was clear that fewer written resources concerning cancer-related fatigue were available in Italy compared to either in Switzerland or in the UK.
The study supported the view within the current literature that whilst cancer-related fatigue is recognised as a frequent and disruptive symptom, patient education about this symptom and its management still needs to be enhanced. The resources available to educate patients about cancer-related fatigue should be improved and made more accessible to patients who experience it.
在过去二十年中，人们对癌症相关疲劳的关注度不断提高，并致力于对这一主题进行研究。然而，针对患有这种令人痛苦且常见症状的患者的教育资源是否充足的研究却很匮乏。仅开展过一项研究，该研究探讨了瑞士和英国患者的观点。
本研究重复并扩展了先前在英国和瑞士进行的研究。它旨在了解居住在意大利的癌症患者可获取的有关癌症相关疲劳的材料是否充足，并确定意大利癌症相关疲劳患者的教育偏好和需求。这些是通过开展两个焦点小组来实现的。一个焦点小组由意大利患者组成，另一个由一组意大利护士组成。
本研究的结果支持了患者对及时、准确和个性化信息的渴望。有效的疲劳教育的障碍包括临床环境中关于疲劳的对话有限。似乎护士和患者在症状管理方面有不同的优先事项。此外，人们认识到往往没有足够的时间向患者充分告知有关疲劳的信息。参与者认为书面材料是口头信息的有益补充，因此支持以两种形式提供信息。然而，很明显，与瑞士或英国相比，意大利关于癌症相关疲劳的书面资源较少。
该研究支持了当前文献中的观点，即虽然癌症相关疲劳被认为是一种常见且具有干扰性的症状，但关于这种症状及其管理的患者教育仍需加强。应改善用于教育患者有关癌症相关疲劳的资源，并使其对经历这种疲劳的患者更容易获取。
