Sainio Carita, Eriksson Elina
Health Care Region of Helsinki and Uusimaa, HUCH Cancer Center, PL 180, FIN-00029 HYKS, Helsinki, Finland.
Eur J Oncol Nurs. 2003 Mar;7(1):39-49. doi: 10.1054/ejon.2002.0218.
The aim of this study was to find out how much information cancer patients feel they get from nurses and physicians; how that information is provided; and what other sources patients use in their search for information. Also, the meaning of information was surveyed. The sample comprised 273 cancer patients. Data were collected with a questionnaire specifically developed for this research. Descriptive statistics and non-parametric tests were used for statistical analyses. The results indicated that there is still much to do when it comes to informing cancer patients. Around half of the respondents had not received enough information about the prognosis, the alternatives of treatment and the effects of cancer or treatment. The provision of written information by staff was regarded as insufficient. Leaflets of cancer and related issues were the most popular source of additional information. The length of time since diagnosis, employment status, physical condition and mood had the strongest associations with patients receiving or searching for information. Most respondents wanted information because it had a positive impact on their feelings and attitudes and it helped them to cope with their situation.
本研究的目的是了解癌症患者认为他们从护士和医生那里获得了多少信息；这些信息是如何提供的；以及患者在寻求信息时还会使用哪些其他来源。此外，还对信息的含义进行了调查。样本包括273名癌症患者。数据通过专门为本研究开发的问卷收集。描述性统计和非参数检验用于统计分析。结果表明，在为癌症患者提供信息方面仍有许多工作要做。大约一半的受访者没有获得足够的关于预后、治疗选择以及癌症或治疗效果的信息。工作人员提供的书面信息被认为是不足的。癌症及相关问题的宣传册是最受欢迎的额外信息来源。自诊断以来的时间长度、就业状况、身体状况和情绪与患者接收或寻求信息的关联最为紧密。大多数受访者想要信息是因为它对他们的感受和态度有积极影响，并且有助于他们应对自己的状况。
