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保密性与医学伦理学的伦理准则。

Confidentiality and the ethics of medical ethics.

作者信息

Rogers W A, Draper H

机构信息

Department of General Practice, University of Edinburgh, Edinburgh, UK.

出版信息

J Med Ethics. 2003 Aug;29(4):220-4. doi: 10.1136/jme.29.4.220.

DOI:10.1136/jme.29.4.220
PMID:12930854
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1733781/
Abstract

In this paper we consider the use of cases in medical ethics research and teaching. To date, there has been little discussion about the consent or confidentiality requirements that ought to govern the use of cases in these areas. This is in marked contrast to the requirements for consent to publish cases in clinical journals, or to use personal information in research. There are a number of reasons why it might be difficult to obtain consent to use cases in ethics. Many cases concern people who are incompetent, and thus unable to give consent. Often the material is of a sensitive nature, it is not clear who should give consent, or the ethicist has no access to those involved. We argue that the use of cases in ethics research and teaching can be justified by appeal to the public interest argument, and suggest a number of areas for discussion and clarification.

摘要

在本文中,我们探讨了案例在医学伦理研究与教学中的应用。迄今为止,对于在这些领域使用案例应遵循的同意或保密要求,几乎没有相关讨论。这与临床期刊发表案例或研究中使用个人信息时的同意要求形成了鲜明对比。在伦理领域,获取案例使用的同意可能存在诸多困难。许多案例涉及无行为能力的人,因此无法给予同意。通常材料具有敏感性质,不清楚应由谁给予同意,或者伦理学家无法接触到相关人员。我们认为,通过诉诸公共利益论据,可以证明在伦理研究和教学中使用案例是合理的,并提出了一些需要讨论和澄清的领域。

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本文引用的文献

1
It doesn't cost anything just to ask, does it? The ethics of questionnaire-based research.仅仅询问一下并不花费任何东西,不是吗?基于问卷的研究的伦理问题。
J Med Ethics. 2002 Feb;28(1):41-4. doi: 10.1136/jme.28.1.41.
2
The hexamethonium asthma study and the death of a normal volunteer in research.六甲铵哮喘研究与一名正常志愿者在研究中的死亡。
J Med Ethics. 2002 Feb;28(1):3-4. doi: 10.1136/jme.28.1.3.
3
Informed consent -- a publisher's duty.知情同意——出版商的职责。
BMJ. 1998 Mar 28;316(7136):1002-3.
4
Changing the BMJ's position on informed consent would be counterproductive.
BMJ. 1998 Mar 28;316(7136):1001-2.
5
Stories as case knowledge: case knowledge as stories.作为案例知识的故事:作为故事的案例知识。
Med Educ. 2001 Sep;35(9):862-6. doi: 10.1046/j.1365-2923.2001.01016.x.
6
That's another story: narrative methods and ethical practice.那是另一个话题:叙事方法与道德实践。
J Med Ethics. 2001 Jun;27(3):198-202. doi: 10.1136/jme.27.3.198.
7
Revealing false paternity: some ethical considerations.揭示虚假亲子关系:一些伦理考量
Lancet. 2001 Mar 31;357(9261):1033-5. doi: 10.1016/S0140-6736(00)04240-9.
8
Protecting the privacy of family members in survey and pedigree research.在调查和系谱研究中保护家庭成员的隐私。
JAMA. 2001 Jan 10;285(2):207-11. doi: 10.1001/jama.285.2.207.
9
Do case studies mislead about the nature of reality?案例研究是否会在现实本质方面产生误导?
J Med Ethics. 1999 Feb;25(1):42-6. doi: 10.1136/jme.25.1.42.
10
Informed consent in medical research.医学研究中的知情同意。
BMJ. 1998 Mar 28;316(7136):1000-5. doi: 10.1136/bmj.316.7136.1000.