Fleck Marcelo Pio da Almeida, Borges Zulmira Newlands, Bolognesi Gustavo, da Rocha Neusa Sica
Departamento de Psiquiatria e Medicina Legal, Faculdade de Medicina, Universidade Federal do Rio Grande do Sul, Porto Alegre, RS, Brasil.
Rev Saude Publica. 2003 Aug;37(4):446-55. doi: 10.1590/s0034-89102003000400009. Epub 2003 Aug 20.
To describe the development of the "spirituality, religiousness, and personal beliefs" for the WHOQOL-SRBP instrument, and to report the main findings of research conducted with focus groups composed of subjects representative of the most common religious practices, patients, and healthcare professionals.
The several stages of the development of the WHOQOL-SRBP instrument are described: literature review, focus groups, elaboration of national questions, elaboration of consensual items, pilot-study development, pilot-study application, question performance analysis, development of the definitive instrument, and field testing. The focus group stage was conducted in Porto Alegre, Southern Brazil, and included 15 groups (n=142). These included separate groups for healthcare professionals, acute, chronic, and terminal patients, religious groups (Catholics, Evangelicals, Afro-Brazilians, and Spiritualists), and atheists. Each group discussed facets suggested by a group of "experts", as well as any further dimensions spontaneously raised by group participants.
The focus group technique proved itself adequate for the collection of different opinions from the participants, allowing for the testing of the hypotheses proposed by the researchers, redirecting and/or broadening previously established concepts. In addition, it highlighted the importance of the discussion of the spiritual dimension for patient's lives.
描述世界卫生组织生活质量量表-精神、宗教和个人信仰部分（WHOQOL-SRBP）的编制过程，并报告由代表最常见宗教活动的对象、患者和医疗保健专业人员组成的焦点小组所开展研究的主要结果。
描述了WHOQOL-SRBP量表编制的几个阶段：文献综述、焦点小组、拟定国家问题、拟定共识性条目、预试验开发、预试验应用、问题性能分析、确定最终量表以及现场测试。焦点小组阶段在巴西南部的阿雷格里港进行，包括15个小组（n = 142）。这些小组包括医疗保健专业人员、急性病患者、慢性病患者和晚期患者、宗教团体（天主教徒、福音派、非裔巴西人和唯灵论者）以及无神论者的单独小组。每个小组讨论了一组“专家”提出的方面，以及小组成员自发提出的任何其他维度。
焦点小组技术证明适用于收集参与者的不同意见，能够对研究人员提出的假设进行检验，重新引导和/或拓宽先前确立的概念。此外，它突出了讨论精神维度对患者生活的重要性。
