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离婚后家庭中照顾患有囊性纤维化孩子的母亲们。

Mothers in postdivorce families caring for a child with cystic fibrosis.

作者信息

Ganong Lawrence, Doty Mary Ellen, Gayer Debra

机构信息

University of Missouri-Columbia, Columiba, MO 65211, USA.

出版信息

J Pediatr Nurs. 2003 Oct;18(5):332-43. doi: 10.1016/s0882-5963(03)00105-2.

Abstract

This study explored the experiences of mothers of children with cystic fibrosis (CF) in postdivorce family structures. In-depth interviews of mothers were conducted by registered nurses with expertise in CF. Interviews focused on responsibility for care of the CF child within the context of postdivorce families (e.g., extent of nonresidential fathers' involvement in children's care, communication between households). Interviews were audiotaped and transcribed verbatim. The constant comparison method was used for analyzing interview data. Marital transitions contributed to the closeness between mothers and children with CF, but they also added to the mothers' sense of being overwhelmed with responsibilities. It is likely that children and mothers are more at risk for stress-related problems when mothers are overburdened by the demands of caregiving, earning a living, and other responsibilities.

摘要

本研究探讨了患有囊性纤维化(CF)儿童的母亲在离婚后家庭结构中的经历。由具有CF专业知识的注册护士对母亲进行了深入访谈。访谈聚焦于离婚后家庭背景下对CF儿童的照料责任(例如,非居住父亲对儿童照料的参与程度、家庭之间的沟通)。访谈进行了录音并逐字转录。采用持续比较法分析访谈数据。婚姻转变增进了患有CF的母亲与孩子之间的亲密关系,但也增加了母亲不堪重负的责任感。当母亲因照料、谋生及其他责任的需求而不堪重负时,孩子和母亲更有可能面临与压力相关的问题。

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