van Oorschot B, Schweitzer S
Modellprojekt Patienten als Partner-Tumorpatienten und ihr Mitwirken bei medizinischen Entscheidungen 1, Friedrich-Schiller-Universität Jena.
Dtsch Med Wochenschr. 2003 Oct 31;128(44):2295-9. doi: 10.1055/s-2003-43188.
Palliative care and care of the dying are not widely taught in medical education. Yet, through the guidelines of the Federal Medical Council (Bundesärztekammer), doctors are obliged professionally to accompany the dying process. Systematic studies concerning doctors' motivation and action in this special situation are rare. This study aims to evaluate the views and attitudes of general practitioners towards the care for cancer patients in the terminal stage of disease.
In association with the project of the German Ministry of Health "Patienten als Partner-Tumorpatienten und ihr Mitwirken in medizinischen Entscheidungen" ("Patients as partners: patients with malignant tumor and their collaboration in medical decision making"), a questionnaire was designed for general practitioners based on qualitative interviews. The self-guiding questionnaire comprised questions concerning death and dying, patient-doctor relationship and day-to-day medical actions.
505 general practitioners (GPs) received the questionnaires. 170 were filled in and sent back (33%). The GPs felt responsible for the care of the dying patients. Pain control was the main goal (97%). Symptom control was thought to be important/very important in 87%, the application of life-prolonging measures in 12 %. Basic analgesic medication was prescribed by 93% of GPs. 89%/77% of the general practitioners answered that they were satisfied with the technical equipment of the hospital/clinic, whereas there was a dissatisfaction with psychological and spiritual support.
General practitioners widely accept their responsibility for the care of the dying patients. Pain control is the major goal in this group of patients. Some items (use of co-analgesia, prescription of peak analgesia) seem to be open to improvements. Despite a high motivation, general practitioners show their dissatisfaction with some aspects of the care for dying people. Palliative care teams could be helpful in this situation.
姑息治疗和临终关怀在医学教育中并未得到广泛传授。然而,根据联邦医学委员会(德国医师协会)的指导方针,医生在职业上有义务陪伴患者度过临终过程。关于医生在这种特殊情况下的动机和行为的系统性研究很少。本研究旨在评估全科医生对癌症终末期患者护理的看法和态度。
与德国卫生部的“患者作为伙伴:肿瘤患者及其在医疗决策中的参与”项目相关联,在定性访谈的基础上为全科医生设计了一份问卷。这份自导式问卷包括有关死亡和临终、医患关系以及日常医疗行为的问题。
505名全科医生收到了问卷。170份问卷被填写并返还(33%)。全科医生认为自己对临终患者的护理负有责任。疼痛控制是主要目标(97%)。87%的人认为症状控制重要/非常重要,12%的人认为延长生命措施的应用重要。93%的全科医生开具了基本的镇痛药物。89%/77%的全科医生表示他们对医院/诊所的技术设备满意,而对心理和精神支持不满意。
全科医生广泛接受他们对临终患者护理的责任。疼痛控制是这类患者的主要目标。一些项目(辅助镇痛的使用、峰值镇痛的处方)似乎有待改进。尽管积极性很高,但全科医生对临终护理的某些方面表示不满。在这种情况下,姑息治疗团队可能会有所帮助。