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卡维尔和库鲁帕伊蒂:监禁与社区的经历

Carville and Curupaiti: experiences of confinement and community.

作者信息

White Cassandra

机构信息

Department of Anthropology and Sociology, Sweet Briar College, Virginia, USA.

出版信息

Hist Cienc Saude Manguinhos. 2003;10(Suppl 1):123-41. doi: 10.1590/s0104-59702003000400006.

DOI:10.1590/s0104-59702003000400006
PMID:14650409
Abstract

Although Hansen's disease (leprosy) is still a significant problem in many parts of the world, the effectiveness of multidrug therapy has allowed people affected by this disease to be treated on an outpatient basis. However, throughout much of the twentieth century, people diagnosed with Hansen's disease were isolated from their families in facilities known as "leprosaria". This article presents a brief history of isolation policies and the development of community structures at two such facilities, Carville and Curupaiti, in the United States and Brazil, respectively. The modern dilemmas faced by the administration, staff, and residents of these institutions will also be discussed.

摘要

尽管汉森病(麻风病)在世界许多地区仍是一个重大问题,但多药疗法的有效性使感染这种疾病的人能够在门诊接受治疗。然而,在整个20世纪的大部分时间里,被诊断患有汉森病的人在被称为“麻风病院”的设施中与家人隔离。本文分别介绍了美国的卡维尔和巴西的库鲁帕伊蒂这两个此类设施的隔离政策简史以及社区结构的发展。还将讨论这些机构的管理人员、工作人员和居民所面临的现代困境。

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引用本文的文献

1
Project REENCONTRO: ethical aspects of genetic identification in families separated by the compulsory isolation of leprosy patients in Brazil.REENCONTRO项目:巴西麻风病人强制隔离导致家庭分离情况下基因鉴定的伦理问题
J Community Genet. 2015 Jul;6(3):215-22. doi: 10.1007/s12687-015-0227-3. Epub 2015 May 13.
2
Leprosy in the 21st century.21世纪的麻风病
Clin Microbiol Rev. 2015 Jan;28(1):80-94. doi: 10.1128/CMR.00079-13.
3
Genetics and human rights. Two histories: Restoring genetic identity after forced disappearance and identity suppression in Argentina and after compulsory isolation for leprosy in Brazil.
遗传学与人类权利。两段历史:阿根廷强迫失踪和身份压制后恢复遗传身份,以及巴西麻风病强制隔离后恢复身份。
Genet Mol Biol. 2014 Mar;37(1 Suppl):299-304. doi: 10.1590/s1415-47572014000200016.