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伦敦感染艾滋病毒的非洲女性:一项描述性研究。

Women from Africa living with HIV in London: a descriptive study.

作者信息

Anderson J, Doyal L

机构信息

Centre for Infectious Disease, Institute of Cell & Molecular Science, Barts and the London Queen Mary's School of Medicine and Dentistry, The Andrewes Unit, St Bartholomew's Hospital, London, UK.

出版信息

AIDS Care. 2004 Jan;16(1):95-105. doi: 10.1080/09540120310001634001.

Abstract

There are no studies that have examined the particular needs and experiences of African women living with HIV in the UK at a time when they represent an increasingly large proportion of the UK HIV epidemic. This study explores the illness biographies and daily lives of HIV-positive African women receiving treatment in London. Sixty-two women from 11 African countries attending HIV specialist clinics in five London hospitals participated in self-completion questionnaires and in depth semi-structured interviews. Using a narrative approach, women were asked to talk about their HIV status in the broader context of their life history. Important differences exist within this group based mainly on nationality, income, education level and legal status in the UK. However, marked similarities also emerged which were related in part to their situation as migrants and were compounded by their illness. Stigma, both actual and perceived, had a profound impact on women's lives, making control of information about their situation a matter of acute concern. This had an effect on how women accessed health services and voluntary sector agencies. The resilience of women in dealing with difficulties in their lives was strengthened by religious belief. Such similarities and differences need to be properly understood by health and social care professionals if they are to offer the most appropriate care for this growing population of patients.

摘要

在英国感染艾滋病毒的非洲女性在英国艾滋病毒疫情中所占比例日益增大,但目前尚无研究审视过她们的特殊需求和经历。本研究探讨了在伦敦接受治疗的艾滋病毒呈阳性的非洲女性的患病经历和日常生活。来自11个非洲国家、在伦敦五家医院的艾滋病毒专科诊所就诊的62名女性参与了自填式问卷调查和深度半结构化访谈。采用叙事方法,研究要求这些女性在其生活史的更广泛背景下谈论她们的艾滋病毒感染状况。该群体内部存在着重要差异,主要基于国籍、收入、教育水平和在英国的法律地位。然而,也出现了明显的相似之处,部分与她们作为移民的处境有关,且因疾病而更加复杂。实际存在的和感知到的耻辱感对女性的生活产生了深远影响,使得控制有关她们状况的信息成为一个迫切关切的问题。这对女性获取医疗服务和志愿部门机构产生了影响。宗教信仰增强了女性应对生活困难的复原力。如果卫生和社会护理专业人员要为这一不断增加的患者群体提供最恰当的护理,就需要正确理解这些相似之处和差异。

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