Rudge T, Morse K
School of Nursing, Flinders University, Adelaide SA 5001, Australia.
J Psychiatr Ment Health Nurs. 2004 Feb;11(1):3-11. doi: 10.1111/j.1365-2850.2004.00641.x.
This paper reports on a qualitative, critical study into the lives of relatives and partners of people living with enduring effects of schizophrenia. A review of the literature showed that caregivers and relatives of sufferers were seldom asked about their experiences, instead they were subject to blame or criticism regarding their parental or caregiving practices. Caregivers of people with schizophrenia were interviewed in order to reveal their experience of caring for their kin after a medication change to atypical neuroleptics. The interview analysis was compared with mental health professional literature, using a Foucauldian approach to reveal the operation of language and power in the positioning of caregivers. This analysis was then compared to the talk of the caregivers. Similarities and differences in their ways of talking about caring were identified. Caregivers spoke of protracted periods of time before the establishment of a definite diagnosis, ambivalence about medication and 'never giving up'. The paper concludes that life for caregivers is constituted as doubly problematic, experiencing stigma personally and vicariously through their kin.
本文报告了一项针对精神分裂症持久影响患者的亲属及伴侣生活的定性批判性研究。文献综述表明，很少有人询问患者的照料者和亲属的经历，相反，他们在育儿或照料行为方面受到指责或批评。为了揭示在改用非典型抗精神病药物后，精神分裂症患者的照料者照顾亲属的经历，对他们进行了访谈。采用福柯式方法，将访谈分析与心理健康专业文献进行比较，以揭示语言和权力在照料者定位中的运作。然后将这一分析与照料者的谈话进行比较。确定了他们在谈论照料方式上的异同。照料者谈到在确诊之前经历了漫长的时期，对药物治疗存在矛盾心理，以及“永不放弃”。本文的结论是，照料者的生活存在双重问题，他们自己以及通过亲属都遭受了污名化。
