Bussing R, Johnson S B
University of Florida, Department of Psychiatry, Gainesville.
Gen Hosp Psychiatry. 1992 Nov;14(6):387-403. doi: 10.1016/0163-8343(92)90006-v.
The human immunodeficiency virus (HIV) has had a fundamental impact on quality of life, delivery of care, and directions of research efforts for the hemophilia community. Studies of psychosocial issues in hemophilia before and after the HIV crisis are reviewed. Before this crisis, research addressed personality factors and coping, family functioning, impact of psychological factors on bleeding, effects of home treatment, and school functioning. After HIV problems surfaced, research focused on psychosocial impact of the epidemic, HIV knowledge assessments, and HIV transmission prevention efforts. HIV-positive children with hemophilia have not received sufficient attention. Future directions for research are suggested.
人类免疫缺陷病毒（HIV）对血友病群体的生活质量、医疗服务提供以及研究工作方向产生了根本性影响。本文回顾了HIV危机前后血友病患者心理社会问题的研究情况。在这场危机之前，研究主要涉及人格因素与应对方式、家庭功能、心理因素对出血的影响、家庭治疗的效果以及学校功能等方面。HIV问题出现后，研究重点转向了该流行病的心理社会影响、HIV知识评估以及HIV传播预防措施。血友病合并HIV阳性的儿童尚未得到足够的关注。本文还提出了未来的研究方向。
