• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
Investigating the mental health and coping strategies of parents with major thalassemic children in Bandar Abbas.调查阿巴斯港患有重型地中海贫血症患儿的父母的心理健康状况及应对策略。
J Educ Health Promot. 2015 Aug 6;4:59. doi: 10.4103/2277-9531.162375. eCollection 2015.
2
Investigating the prevalence and causes of events leading to falls among the elderly hospitalized in Bandar Abbas hospitals.调查阿巴斯港医院住院老年人中导致跌倒事件的发生率及原因。
J Educ Health Promot. 2015 Feb 23;4:11. doi: 10.4103/2277-9531.151920. eCollection 2015.
3
Evaluation of hepatitis C, hepatitis B, and HIV virus Serology pandemic in thalassemia patients of Shahid Mohammadi Hospital of Bandar Abbas, Iran.伊朗阿巴斯港沙希德·穆罕默迪医院地中海贫血患者丙型肝炎、乙型肝炎和艾滋病毒血清学大流行情况评估。
Electron Physician. 2017 Mar 25;9(3):4014-4019. doi: 10.19082/4014. eCollection 2017 Mar.
4
Occupational stress and mental health among nurses in a medical intensive care unit of a general hospital in Bandar Abbas in 2013.2013年设拉子一家综合医院重症监护病房护士的职业压力与心理健康状况
Electron Physician. 2015 Jul 20;7(3):1108-13. doi: 10.14661/2015.1108-1113. eCollection 2015 Jul.
5
[Psycho-emotional impact of a child's disability on parents].[儿童残疾对父母的心理情感影响]
Arch Pediatr. 2013 Jan;20(1):9-16. doi: 10.1016/j.arcped.2012.10.024. Epub 2012 Dec 20.
6
Family pediatrics: report of the Task Force on the Family.家庭儿科学:家庭问题特别工作组报告
Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.
7
Coping strategies and psychological distress among mothers of patients with nonsyndromic cleft lip and palate and the family impact of this disorder.非综合征性唇腭裂患者母亲的应对策略与心理困扰以及该疾病对家庭的影响。
J Craniofac Surg. 2014 Mar;25(2):441-5. doi: 10.1097/SCS.0000000000000483.
8
Psychological distress and coping strategies in parents of children with cancer in Lebanon.黎巴嫩癌症患儿父母的心理困扰与应对策略
Psychooncology. 2016 Apr;25(4):428-34. doi: 10.1002/pon.3934. Epub 2015 Sep 1.
9
Family pain history predicts child health status in children with chronic rheumatic disease.家族疼痛史可预测慢性风湿性疾病患儿的健康状况。
Pediatrics. 2001 Sep;108(3):E47. doi: 10.1542/peds.108.3.e47.
10
Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan.巴基斯坦地中海贫血症儿童父母的心理社会问题:巴基斯坦白沙瓦的一项横断面研究。
Biopsychosoc Med. 2012 Aug 1;6(1):15. doi: 10.1186/1751-0759-6-15.

引用本文的文献

1
Depression, anxiety, and stress among mothers of children with thalassemia in Bangladesh: a cross-sectional study.孟加拉国地中海贫血患儿母亲的抑郁、焦虑和压力:一项横断面研究。
BMC Womens Health. 2025 May 13;25(1):221. doi: 10.1186/s12905-025-03762-8.
2
Comparison Between Burden of Care Partners of Individuals with Alzheimer's Disease Versus Individuals with Other Chronic Diseases.阿尔茨海默病患者与其他慢性病患者的护理伙伴负担比较
Neurol Ther. 2023 Aug;12(4):1051-1068. doi: 10.1007/s40120-023-00493-6. Epub 2023 May 24.
3
A Qualitative Study Exploring the Experiences of Mothers Caring for Their Children with Thalassemia in Iran.伊朗母亲照顾地中海贫血症患儿的体验定性研究
Ethiop J Health Sci. 2021 Nov;31(6):1287-1294. doi: 10.4314/ejhs.v31i6.25.
4
Concerns of Thalassemia Patients, Carriers, and their Caregivers in Malaysia: Text Mining Information Shared on Social Media.马来西亚地中海贫血患者、携带者及其照顾者的担忧:社交媒体上分享的文本挖掘信息
Healthc Inform Res. 2021 Jul;27(3):200-213. doi: 10.4258/hir.2021.27.3.200. Epub 2021 Jul 31.
5
How Parents Cope with the Care of a Child with Epilepsy: Based upon Grounded Theory.父母如何应对儿童癫痫护理:基于扎根理论。
Ethiop J Health Sci. 2021 Mar;31(2):329-338. doi: 10.4314/ejhs.v31i2.16.
6
The experiences of families raising autistic children: A phenomenological study.抚养自闭症儿童家庭的经历:一项现象学研究。
J Educ Health Promot. 2021 Feb 27;10:78. doi: 10.4103/jehp.jehp_837_20. eCollection 2021.

本文引用的文献

1
Fathers' coping mechanisms related to parenting a chronically ill child: implications for advanced practice nurses.父亲应对慢性疾病患儿养育的应对机制:对高级实践护士的启示。
J Pediatr Health Care. 2011 Mar-Apr;25(2):96-104. doi: 10.1016/j.pedhc.2009.09.004. Epub 2010 Jan 29.
2
Depression in mothers of children with thalassemia or blood malignancies: a study from Iran.地中海贫血或血液恶性肿瘤患儿母亲的抑郁:一项来自伊朗的研究。
Clin Pract Epidemiol Ment Health. 2006 Oct 4;2:27. doi: 10.1186/1745-0179-2-27.
3
Cytoprotective effects of the antioxidant phytochemical indicaxanthin in beta-thalassemia red blood cells.抗氧化植物化学物质甜菜红素对β地中海贫血红细胞的细胞保护作用。
Free Radic Res. 2006 Jul;40(7):753-61. doi: 10.1080/10715760600554228.
4
Quality of life in patients with thalassemia intermedia compared to thalassemia major.中间型地中海贫血患者与重型地中海贫血患者的生活质量比较。
Ann N Y Acad Sci. 2005;1054:457-61. doi: 10.1196/annals.1345.059.
5
Quality of life in thalassemia.地中海贫血患者的生活质量
Ann N Y Acad Sci. 2005;1054:273-82. doi: 10.1196/annals.1345.035.
6
A child with chronic illness and the process of family adaptation.一个患有慢性病的孩子以及家庭适应过程。
J Pediatr Nurs. 1996 Feb;11(1):52-61. doi: 10.1016/S0882-5963(96)80038-8.
7
Perceived stressors and coping strategies of parents who have children with developmental disabilities: a comparison of mothers with fathers.有发育障碍儿童的父母所感知到的压力源及应对策略:母亲与父亲的比较。
J Pediatr Nurs. 1995 Oct;10(5):311-20. doi: 10.1016/S0882-5963(05)80049-1.
8
Japanese mothers' responses to the diagnosis of childhood diabetes.日本母亲对儿童糖尿病诊断的反应。
J Pediatr Nurs. 1992 Apr;7(2):154-60.
9
Psychosocial issues in hemophilia before and after the HIV crisis: a review of current research.艾滋病危机前后血友病患者的心理社会问题:当前研究综述
Gen Hosp Psychiatry. 1992 Nov;14(6):387-403. doi: 10.1016/0163-8343(92)90006-v.

调查阿巴斯港患有重型地中海贫血症患儿的父母的心理健康状况及应对策略。

Investigating the mental health and coping strategies of parents with major thalassemic children in Bandar Abbas.

作者信息

Dadipoor Sakineh, Haghighi Hamid, Madani Abdoulhhossain, Ghanbarnejad Amin, Shojaei Fatemeh, Hesam Aliakbar, Moradabadi Ali Safari

机构信息

Hormozgan Fertility and Infertility Research Center, Hormozgan University of Medical Sciences, Bandar Abbas, Iran.

Department of Counseling and Psychological, School of Technology, Hormozgan Science and, Research Branch, Islamic Azad University, Bandar Abbas, Iran.

出版信息

J Educ Health Promot. 2015 Aug 6;4:59. doi: 10.4103/2277-9531.162375. eCollection 2015.

DOI:10.4103/2277-9531.162375
PMID:26430686
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4579777/
Abstract

INTRODUCTION

Major thalassemia is a hereditary, chronic blood disease caused by the synthesis deficiency of one or more polypeptide chains of globin during childhood. This leads to the rise of blood pressure and family tensions. Therefore, the coping strategies of the family could seriously affect and facilitate the thalassemic child's healthy growth. The present research sought to investigate the mental health and coping strategies of families with major thalassemic children in Bandar Abbas in 2013.

MATERIALS AND METHODS

This study is of a descriptive-analytical and cross-sectional type. Research population consisted of 140 parents of major thalassemic children who visited Shahid Mohammadi Hospital of Bandar Abbas. The instruments used were the 12-item General Health Questionnaire of Goldberg and Williams along with the coping strategies questionnaire. Nonprobabilistic, convenient sampling method was used. To analyze the data, Spearman's correlation coefficient, Chi-square and descriptive statistical tests were used. The significance level was set at P < 0.05.

RESULTS

Data analysis showed that parents' mental health (32 ± 4.25) along with their coping strategy scores (45 ± 7.50) was about the average. The most prevalent coping strategies among the parents were represented as: "I trust in God in order to get my problems solved" (87%), "to get mentally and spiritually relieved, I would visit mosques and holy shrines" (53%), and "to overcome problems, I make harder attempts" (50.7%). A significant correlation was found between the parents' coping strategies and general health (P < 0.001). A significant correlation was also observed between mother's educational level (P = 0.044), age (P = 0.022) and general health.

DISCUSSION AND CONCLUSION

According to the results of this research, it is categorical for the ministry of health and medical education and those in charge to pay special and adequate attention to the social, spiritual, and mental health of these children and their families.

摘要

引言

重型地中海贫血是一种遗传性慢性血液疾病,由儿童期珠蛋白一条或多条多肽链合成缺陷引起。这会导致血压升高和家庭关系紧张。因此,家庭的应对策略会严重影响并促进重型地中海贫血患儿的健康成长。本研究旨在调查2013年阿巴斯港重型地中海贫血患儿家庭的心理健康状况及应对策略。

材料与方法

本研究为描述性分析横断面研究。研究对象为140名前往阿巴斯港沙希德·穆罕默迪医院就诊的重型地中海贫血患儿的父母。使用的工具为戈德堡和威廉姆斯的12项一般健康问卷以及应对策略问卷。采用非概率方便抽样法。数据分析采用斯皮尔曼相关系数、卡方检验和描述性统计检验。显著性水平设定为P < 0.05。

结果

数据分析表明,父母的心理健康状况(32 ± 4.25)及其应对策略得分(45 ± 7.50)处于平均水平。父母中最普遍的应对策略为:“我相信上帝能解决我的问题”(87%),“为了在精神上得到解脱,我会去清真寺和圣地”(53%),以及“为克服问题,我会更加努力尝试”(50.7%)。父母的应对策略与总体健康之间存在显著相关性(P < 0.001)。母亲的教育水平(P = 0.044)、年龄(P = 0.022)与总体健康之间也存在显著相关性。

讨论与结论

根据本研究结果,卫生和医学教育部及相关负责人必须特别充分关注这些患儿及其家庭的社会、精神和心理健康。