Hennequin Martine, Faulks Denise, Allison Paul J
University of Auvergne, Faculty of Dentistry, Clermont Ferrand, France.
J Orofac Pain. 2003 Fall;17(4):347-53.
To investigate parents' ability to perceive pain experienced by their offspring with Down syndrome (DS).
Data were gathered by the use of the Oral Assessment in Down Syndrome Questionnaire in a cross-sectional survey design in France. A sample of parents of 204 children with DS and 161 of their siblings without DS was accrued.
Parental reports of difficulty discerning if their child with DS was in pain did not change with age of the child, remaining at a prevalence of 28% to 32%. Reports of difficulty discerning where that child felt pain diminished with older age from 74% to 27%. The likelihood of parents reporting difficulty discerning if and where their child with DS had pain was greater than for a sibling without DS. However, reports of pain experience for the 2 groups were the same. Moreover, different functional and dysfunctional behavioral variables were found to be predictors of these 2 pain perception variables.
Parental perception of pain is less discriminant for children with DS than for their siblings without DS.
调查父母感知唐氏综合征（DS）患儿疼痛的能力。
在法国采用横断面调查设计，通过使用唐氏综合征口腔评估问卷收集数据。招募了204名唐氏综合征患儿的父母样本以及161名其非唐氏综合征的兄弟姐妹。
父母报告难以辨别其唐氏综合征患儿是否疼痛的情况并未随患儿年龄变化，患病率维持在28%至32%。报告难以辨别患儿疼痛部位的情况随年龄增长从74%降至27%。父母报告难以辨别其唐氏综合征患儿是否疼痛及疼痛部位的可能性高于其非唐氏综合征的兄弟姐妹。然而，两组的疼痛体验报告相同。此外，发现不同的功能和功能失调行为变量是这两个疼痛感知变量的预测因素。
与非唐氏综合征的孩子相比，父母对唐氏综合征患儿疼痛的感知辨别力较低。
