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阿尔茨海默病国际组织的10/66痴呆症研究小组——发展中国家行动研究的一个典范。

Alzheimer Disease International's 10/66 Dementia Research Group - one model for action research in developing countries.

作者信息

Prince Martin, Graham Nori, Brodaty Henry, Rimmer Elizabeth, Varghese Mathew, Chiu Helen, Acosta Daisy, Scazufca Marcia

机构信息

Institute of Psychiatry, De Crespigny Park, London, UK.

出版信息

Int J Geriatr Psychiatry. 2004 Feb;19(2):178-81. doi: 10.1002/gps.1059.

DOI:10.1002/gps.1059
PMID:14758583
Abstract

BACKGROUND

The 10/66 Dementia Research Group (10/66) founded in 1998, is a network of over 100 researchers from mainly developing countries. 10/66 is committed to encourage more good quality research in those regions, where an estimated two-thirds of all those with dementia live. It represents a collaboration of academics, clinicians, and an international non-governmental organization, Alzheimer's Disease International (ADI).

METHOD

10/66 pilot studies in 26 centres in Latin America, India, Africa and China and SE Asia suggest that education and culture-fair diagnosis is an attainable aim. Despite extended family care networks, these studies also identified high levels of practical, psychological and economic strain upon caregivers. Population-based studies in six centres will now estimate prevalence, describe impact and seek to identify genetic and environmental risk factors in novel settings. At a practical level, 10/66 has studied ways to circumvent the lack of help-seeking in developing countries, and has developed a low-level intervention to educate and train caregivers.

CONCLUSION

The links with ADI and its international networks, and the volunteerism of ADIs members have fostered the rapid growth of 10/66. The partnership facilitates both the raising of awareness and influence upon policy, as 10/66 research evidence can be used by ADI and national Alzheimer's Associations to direct and support advocacy.

摘要

背景

10/66痴呆症研究小组成立于1998年,是一个由来自主要发展中国家的100多名研究人员组成的网络。10/66致力于在估计有三分之二痴呆症患者居住的那些地区鼓励开展更多高质量研究。它代表了学者、临床医生和一个国际非政府组织——国际老年痴呆症协会(ADI)之间的合作。

方法

10/66在拉丁美洲、印度、非洲、中国和东南亚的26个中心开展的试点研究表明,开展公平的教育和文化诊断是一个可以实现的目标。尽管存在大家庭护理网络,但这些研究也发现照顾者承受着高水平的实际、心理和经济压力。六个中心基于人群的研究现在将估计患病率、描述影响并试图在新环境中识别遗传和环境风险因素。在实际层面,10/66研究了在发展中国家克服缺乏寻求帮助行为的方法,并开发了一种低水平干预措施来教育和培训照顾者。

结论

与ADI及其国际网络的联系以及ADI成员的志愿服务促进了10/66的迅速发展。这种伙伴关系有助于提高认识并影响政策,因为ADI和各国老年痴呆症协会可以利用10/66的研究证据来指导和支持宣传工作。

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