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痴呆症的虚拟支持:照顾者的一种可行策略

Virtual Support in Dementia: A Possible Viable Strategy for Caregivers.

作者信息

Ferretti Ceres, Nitrini Ricardo, Brucki Sonia M D

机构信息

Cognitive and Behavioral Neurology Group, Faculty of Medicine, Hospital das Clínicas, University of São Paulo, São Paulo, Brazil.

出版信息

Front Neurol. 2021 Aug 13;12:662253. doi: 10.3389/fneur.2021.662253. eCollection 2021.

DOI:10.3389/fneur.2021.662253
PMID:34484092
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8409523/
Abstract

In the last 10 months, due to the Covid-19 pandemic, several studies have shown that health education and virtual support strategies for caregivers of patients with dementia, in the management of home care, can be viable. Low and middle income countries, in particular, have sought to use these means to reduce the daily burden of caregivers, through virtual meetings of education and support. To present the feasibility of a pilot study on the use of a support action contemplated by the Caad Project-indirect costs of dementia-from HC-FMUSP. Observational study in which 93 caregivers were invited to participate in virtual meetings on a frequency of three times/week, lasting 1 h each. Of the 93 invited family members, and after 3 months, 42 answered eight questions about the effectiveness of the action. High percentages of positive responses regarding program satisfaction ranged from 86 to 100%. This study showed results of a very simple intervention that suggests that it is possible to offer caregivers of patients with dementia a program that can be used in primary care, in order to understand the difficulty of caregivers in their daily care of patients with dementia, with daily management guidelines on a case-by-case basis, in addition to promoting the implementation of an education strategy about the importance of knowing, and recognizing anatomophysiological changes in the aging process and its implications for the rupture of the imaginary line that involves senescence and senility. This allows the caregiver to feel able to protect his patient and himself by preventing the emergence of common diseases in this age group. Further studies are needed to explore this type of non-pharmacological support.

摘要

在过去10个月里,由于新冠疫情,多项研究表明,在家庭护理管理中,针对痴呆症患者照料者的健康教育和虚拟支持策略是可行的。尤其是低收入和中等收入国家,试图通过教育和支持的虚拟会议,利用这些手段减轻照料者的日常负担。介绍一项关于使用Caad项目(痴呆症间接成本,来自圣保罗大学医学院)所设想的支持行动的试点研究的可行性。这是一项观察性研究,邀请了93名照料者参加每周三次、每次持续1小时的虚拟会议。在93名被邀请的家庭成员中,3个月后,42人回答了关于该行动有效性的8个问题。对项目满意度的肯定答复比例很高,从86%到100%不等。这项研究显示了一项非常简单的干预措施的结果,表明有可能为痴呆症患者的照料者提供一个可在初级保健中使用的项目,以便了解照料者在日常照料痴呆症患者时的困难,提供逐案的日常管理指南,此外还促进实施一项关于了解和认识衰老过程中的解剖生理变化及其对涉及衰老和老年期的假想线破裂的影响的重要性的教育策略。这使照料者能够通过预防该年龄组常见疾病的出现,感到有能力保护他的患者和自己。需要进一步研究来探索这种非药物支持类型。

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本文引用的文献

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Caregiver Satisfaction with a Video Telehealth Home Safety Evaluation for Dementia.照顾者对痴呆症视频远程医疗家庭安全评估的满意度
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Improving the care of older patients during the COVID-19 pandemic.改善 COVID-19 大流行期间老年患者的护理。
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Virtual Support Groups for Informal Caregivers of Individuals With Dementia: A Scoping Review.虚拟支持小组为非专业照护者提供支持:对痴呆症患者个体的照护者的范围综述。
Alzheimer Dis Assoc Disord. 2019 Oct-Dec;33(4):362-369. doi: 10.1097/WAD.0000000000000349.
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An assessment of direct and indirect costs of dementia in Brazil.巴西痴呆直接和间接成本评估。
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Online Training and Support Programs Designed to Improve Mental Health and Reduce Burden Among Caregivers of People With Dementia: A Systematic Review.旨在改善痴呆症患者护理人员的心理健康和减轻负担的在线培训和支持计划:系统评价。
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