Agraharkar Mahendra, Patlovany Mathew, Henry Sharon, Bonds Becky
Nephrology Division, Department of Medicine, 4.200 John Sealy Annex, UTMB, 301 University Boulevard, Galveston, Texas 77555-0562, USA.
Adv Perit Dial. 2003;19:163-7.
Despite overwhelming evidence of enhanced survival and quality of life among end-stage renal disease (ESRD) patients treated with home hemodialysis (HHD) and home peritoneal dialysis (PD), use of those two modalities is decreasing. Our analysis of data obtained over the past 6 years reveals that, at the same time as the national ESRD population has grown by more than 33%, the fraction of those patients on home dialysis has decreased by 36%. Similar trends are observable in the State of Texas. At our institution, the percentage of ESRD patients receiving home dialysis dropped by 52% in 6 years. Our capture rate during the same interval ranged from 1% to 9% (mean +/- standard deviation: 3.66% +/- 2.64%). To improve the capture rate and to strengthen our home dialysis program, we adopted these measures: Nephrologists participated in dialysis education and explained renal replacement therapy (RRT) options to each patient and to accompanying family members. The home dialysis coordinator later met with the patients individually. The new patients were then encouraged to meet with patients already enrolled in the home dialysis program. Finally, patients choosing home dialysis were given a questionnaire to rank their reasons for selecting that modality. From April 2001 to July 2002, we initiated 136 patients onto dialysis. Of those patients, 118 selected in-center hemodialysis and 18 chose home dialysis, representing a capture rate of 13% and resultant growth of 117% in our home dialysis program. Our survey revealed that the prime reason for selection of home dialysis was independence (31%), followed by physician guidance, coordinator education, and work schedule (17% each). Familial assistance, familial employment, and privacy were less important (7%, 7%, and 3% respectively). We conclude that, by devoting more time to patient education and discussion of RRTs, nephrologists and dialysis coordinators can significantly increase home dialysis enrollment.
尽管有压倒性的证据表明,接受家庭血液透析(HHD)和家庭腹膜透析(PD)治疗的终末期肾病(ESRD)患者的生存率和生活质量有所提高,但这两种治疗方式的使用却在减少。我们对过去6年获得的数据进行分析后发现,在全国ESRD患者人数增长超过33%的同时,接受家庭透析的患者比例却下降了36%。德克萨斯州也观察到了类似的趋势。在我们机构,接受家庭透析的ESRD患者比例在6年内下降了52%。在同一时期,我们的收治率在1%至9%之间(平均±标准差:3.66%±2.64%)。为了提高收治率并加强我们的家庭透析项目,我们采取了以下措施:肾病专家参与透析教育,并向每位患者及其陪同家属解释肾脏替代治疗(RRT)的选择。家庭透析协调员随后单独与患者会面。然后鼓励新患者与已参加家庭透析项目的患者见面。最后,选择家庭透析的患者会收到一份问卷,让他们对选择该治疗方式的原因进行排序。从2001年4月到2002年7月,我们为136名患者开始了透析治疗。在这些患者中,118人选择了中心血液透析,18人选择了家庭透析,这意味着收治率为13%,我们的家庭透析项目也因此增长了117%。我们的调查显示,选择家庭透析的主要原因是独立性(31%),其次是医生指导、协调员教育和工作安排(各占17%)。家庭援助、家庭就业和隐私则不太重要(分别为7%、7%和3%)。我们得出结论,通过投入更多时间进行患者教育和讨论RRT,肾病专家和透析协调员可以显著提高家庭透析的登记人数。