Cheung Jenny, Hocking Peta
Victoria University, Melbourne, Victoria, Australia.
Qual Health Res. 2004 Feb;14(2):153-66. doi: 10.1177/1049732303258382.
This phenomenological-interpretative inquiry explores spousal carers' experience of caring for their partner while confronting many apparent losses. Ten spousal carers of people with multiple sclerosis (MS) participated in the study. The authors collected data using unstructured in-depth interviews and analyzed them using a hermeneutic method. The constitutive pattern, Weaving Through a Web of Paradoxes, that emerged from the data described how these participants' experience in caring for their partner has changed their way of living and their being. The authors present in this article some of the paradoxes that capture carers' experiences of loss and gain, and their feelings of vulnerability and strength. The insight gained from this study adds new understanding of responses to non-death-related losses.
这项现象学解释性探究探讨了配偶照顾者在面对诸多明显损失时照顾其伴侣的经历。十名多发性硬化症（MS）患者的配偶照顾者参与了该研究。作者通过非结构化深度访谈收集数据，并使用诠释学方法进行分析。从数据中浮现出的构成模式“穿梭于矛盾之网”描述了这些参与者照顾伴侣的经历如何改变了他们的生活方式和存在方式。作者在本文中呈现了一些体现照顾者得失经历以及他们脆弱与坚强感受的矛盾之处。从这项研究中获得的见解为应对与死亡无关的损失的反应增添了新的理解。
