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生活质量与艾滋病病毒:当前的评估工具及临床实践的未来方向

Quality of life and HIV: current assessment tools and future directions for clinical practice.

作者信息

Grossman Howard A, Sullivan Patrick S, Wu Albert W

机构信息

Department of Medicine, Columbia University College of Physicians and Surgeons, New York, USA.

出版信息

AIDS Read. 2003 Dec;13(12):583-90, 595-7.

Abstract

Routine clinical assessment of health-related quality of life in persons with HIV infection has the potential to improve care by assessing and monitoring treatment effects, enhancing communication between patient and provider, and tracking changes in functional status over time. Currently available research-based assessment tools may be inadequate for routine clinical use because of the lack of inclusion of HIV-relevant aspects of quality of life and the impracticality of the use of such tools in the clinical setting. There may be a need for a new, clinically relevant, HIV-specific assessment tool that would be easy to incorporate into clinical practice to briefly, yet comprehensively, assess characteristics frequently found in HIV-infected persons, such as fatigue, pain, nausea and vomiting, sleep disturbances, sexual dysfunction, and body image issues. Until such a tool is developed, the Linear Analogue Self-Assessment questionnaire and the Medical Outcomes Study Short Form-12 (MOS SF-12) are short enough for routine use in a clinical setting. Slightly longer measures, such as the MOS-HIV Health Survey (MOS-HIV), can provide information in a greater number of domains.

摘要

对感染艾滋病毒者的健康相关生活质量进行常规临床评估,有潜力通过评估和监测治疗效果、加强患者与医护人员之间的沟通以及跟踪功能状态随时间的变化来改善护理。由于缺乏对与艾滋病毒相关的生活质量方面的纳入,以及此类工具在临床环境中使用的不切实际性,目前可用的基于研究的评估工具可能不足以用于常规临床。可能需要一种新的、与临床相关的、针对艾滋病毒的评估工具,该工具易于纳入临床实践,以简要但全面地评估艾滋病毒感染者中常见的特征,如疲劳、疼痛、恶心和呕吐、睡眠障碍、性功能障碍以及身体形象问题。在开发出这样一种工具之前,线性模拟自我评估问卷和医学结果研究简表12(MOS SF - 12)足够简短,可在临床环境中常规使用。稍长一些的测量方法,如MOS - 艾滋病毒健康调查(MOS - HIV),可以在更多领域提供信息。

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