Suppr超能文献

患者的视角。

The perspective of the patient.

作者信息

Norton Nancy J

机构信息

International Foundation for Functional Gastrointestinal Disorders, Milwaukee, Wisconsin 53217, USA.

出版信息

Gastroenterology. 2004 Jan;126(1 Suppl 1):S175-9. doi: 10.1053/j.gastro.2003.10.081.

Abstract

The International Foundation for Functional Gastrointestinal Disorders (IFFGD) is a nonprofit education and research group. Founded in 1991, the IFFGD provides information and advice to patients around the world with fecal incontinence and other gastrointestinal disorders, educates physicians through medical symposia and other activities, funds and undertakes research, and provides testimony to Congress about the necessity of furthering research activities related to fecal incontinence through the National Institutes of Health. The IFFGD advocates research directed toward more comprehensive identification of quality-of-life issues associated with fecal incontinence and improved assessment and communication of treatment outcomes related to quality of life, standardization of scales to measure incontinence severity and quality of life, assessment of the utility of diagnostic tests for affecting management strategies and treatment outcomes, development of new drug compounds offering new treatment approaches to fecal incontinence, development and testing of strategies for primary prevention of fecal incontinence associated with childbirth, and further understanding of the process of stigmatization as it applies to the experience of individuals with fecal incontinence.

摘要

国际功能性胃肠病基金会(IFFGD)是一个非营利性的教育和研究组织。IFFGD成立于1991年,为世界各地患有大便失禁和其他胃肠疾病的患者提供信息和建议,通过医学研讨会及其他活动对医生进行培训,资助并开展研究工作,并就通过国立卫生研究院推进与大便失禁相关的研究活动的必要性向国会提供证词。IFFGD倡导开展研究,以更全面地识别与大便失禁相关的生活质量问题,改善对与生活质量相关的治疗结果的评估和沟通,使测量失禁严重程度和生活质量的量表标准化,评估诊断测试对管理策略和治疗结果的效用,开发提供大便失禁新治疗方法的新药化合物,开发和测试预防分娩相关大便失禁的一级预防策略,并进一步了解适用于大便失禁患者经历的污名化过程。

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