Hunt Cameron W, Cavallaro Paul M, Bordeianou Liliana G
Department of Surgery, Massachusetts General Hospital, Boston, Massachusetts.
Department of Surgery, Massachusetts General Hospital and Harvard Medical School, Boston, Massachusetts.
Clin Colon Rectal Surg. 2021 Jan;34(1):5-14. doi: 10.1055/s-0040-1714245. Epub 2021 Jan 28.
While fecal incontinence and constipation can be measured through physiological testing, the subjective experience of severity and impact on health-related quality of life lead to both being most effectively captured through patient-reported measures. Patient-reported measures of severity and impact help to determine baseline symptoms, guide clinical decision making, and compare various treatments. Here, we take pause to review the psychometric qualities that make effective instruments, and discuss some of the most commonly used instruments along with the reasons behind their use. In addition, we highlight the benefits of a standardized instrument designed to evaluate the major symptoms of patients presenting with pelvic floor disorders (including fecal incontinence and constipation). Ultimately, we aim to provide guidance in choosing appropriate instruments for clinical and research use.
虽然大便失禁和便秘可以通过生理测试来测量,但严重程度的主观体验以及对健康相关生活质量的影响,使得通过患者报告的测量方法能最有效地获取这些信息。患者报告的严重程度和影响的测量有助于确定基线症状、指导临床决策以及比较各种治疗方法。在此,我们停下来回顾一下构成有效工具的心理测量特性,并讨论一些最常用的工具及其使用背后的原因。此外,我们强调一种标准化工具的益处,该工具旨在评估盆底功能障碍患者(包括大便失禁和便秘)的主要症状。最终,我们旨在为临床和研究用途选择合适的工具提供指导。