Winkelman Warren J, Choo Chun Wei
Centre for Global eHealth Innovation, University of Toronto, Ontario, Canada.
Health Expect. 2003 Dec;6(4):352-8. doi: 10.1046/j.1369-7625.2003.00237.x.
Patients with long-term chronic disease experience numerous illness patterns and disease trends over time, resulting in different sets of knowledge needs than patients who intermittently seek medical care for acute or short-term problems. Health-care organizations can promote knowledge creation and utilization by chronic patients through the introduction of a virtual, private, disease-specific patient community. This virtual socialization alters the role of chronic disease patients from external consumers of health-care services to a 'community of practice' of internal customers so that, with the tacit support of their health-care organization, they have a forum supporting the integration of knowledge gained from the experiences of living with chronic disease in their self-management. Patient-centred health-care organizations can employ the virtual community to direct and support the empowerment of chronic patients in their care.
患有长期慢性病的患者随着时间推移会经历多种疾病模式和疾病发展趋势,这导致他们的知识需求与那些因急性或短期问题而间歇性寻求医疗护理的患者不同。医疗保健组织可以通过引入一个虚拟的、私密的、特定疾病的患者社区来促进慢性病患者的知识创造和利用。这种虚拟社交将慢性病患者的角色从医疗保健服务的外部消费者转变为内部客户的“实践社区”,这样,在其医疗保健组织的默契支持下,他们有了一个论坛,可支持将从慢性病生活经历中获得的知识整合到自我管理中。以患者为中心的医疗保健组织可以利用虚拟社区来指导和支持慢性病患者在其护理中的赋权。