Moons Philip, De Bleser Leentje, Budts Werner, Sluysmans Thierry, De Wolf Daniel, Massin Martial, Gewillig Marc, Pasquet Agnes, Suys Bert, Vliers André
Center for Health Services and Nursing Research, Katholieke Universiteit Leuven, Leuven, Belgium.
Ann Thorac Surg. 2004 Apr;77(4):1359-65; discussion 1365. doi: 10.1016/j.athoracsur.2003.09.073.
Life expectancy of patients who underwent atrial switch operation for the transposition of the great arteries is relatively good. However, many patients are faced with residua and sequelae, which may hamper their functioning and quality of life. This multicenter study assessed the perceived health status, functional abilities, and quality of life in long-term survivors of the Mustard or Senning operation.
A group of 89 patients (58% male) were selected from four tertiary care centers, consisting of 37 Mustard and 52 Senning operation patients. Perceived health status was measured using a linear analog scale. The educational level, employment status, New York Health Association classification, ability index, and Baecke questionnaire were used to evaluate functional abilities. Quality of life was assessed with a linear analog scale, the Satisfaction with Life Scale, and the Congenital Heart Disease-TNO/AZL Adult Quality of Life.
Patients reported good to very good perceived health, functional capacities, and quality of life. The responses of patients with complex transposition were equivalent to those of patients with simple transposition. The most dominant concerns reported by survivors of the Mustard and Senning operations were experiences about physical limitations and worries about a current or future job or income.
Long-term survivors after atrial inflow correction demonstrated favorable perceived health, functional status, and quality of life; these conditions were, to a large extent, comparable with the status of the general population. These outcome variables were not negatively affected by the complexity of the transposition.
接受大动脉转位心房调转手术的患者预期寿命相对较好。然而，许多患者面临着残留问题和后遗症，这可能会妨碍他们的功能和生活质量。这项多中心研究评估了接受Mustard或Senning手术的长期幸存者的自我感知健康状况、功能能力和生活质量。
从四个三级医疗中心选取了一组89名患者（58%为男性），其中包括37名接受Mustard手术的患者和52名接受Senning手术的患者。使用线性模拟量表测量自我感知健康状况。采用教育水平、就业状况、纽约心脏协会分级、能力指数和贝克问卷来评估功能能力。使用线性模拟量表、生活满意度量表和先天性心脏病-TNO/AZL成人生活质量量表评估生活质量。
患者报告的自我感知健康、功能能力和生活质量良好至非常好。复杂转位患者的反应与简单转位患者相当。Mustard和Senning手术幸存者报告的最主要担忧是身体限制方面的经历以及对当前或未来工作或收入的担忧。
心房内血流矫正术后的长期幸存者表现出良好的自我感知健康、功能状态和生活质量；这些状况在很大程度上与普通人群的状况相当。这些结果变量并未受到转位复杂性的负面影响。
