Gillam Lynn, Pyett Priscilla
Centre for the Study of Health and Society, Department of Public Health, University of Melbourne, Australia.
Monash Bioeth Rev. 2003 Oct;22(4):8-19. doi: 10.1007/BF03351399.
In this paper, we discuss and critically evaluate the National Health and Medical Research Council's recently released document entitled 'Draft Values and Ethics in Aboriginal and Torres Strait Islander Health Research'. We provide a brief account of its development, philosophy and contents, and then consider how the document could be used by HRECs. We recommend that three specially targeted documents be developed from this one document, to meet the particular needs of HRECs, Indigenous people and researchers. We propose a system of Indigenous ethics advisors as a way to implement the central ideas of the new draft guidelines, without falling into the legalism and rule-following that these guidelines explicitly aim to avoid.
在本文中,我们对澳大利亚国家卫生与医学研究委员会最近发布的题为《原住民和托雷斯海峡岛民健康研究中的价值观与伦理草案》的文件进行了讨论和批判性评估。我们简要介绍了该文件的制定过程、理念和内容,然后探讨了人类研究伦理委员会(HRECs)如何使用这份文件。我们建议从这一份文件衍生出三份针对性更强的文件,以满足人类研究伦理委员会、原住民和研究人员的特殊需求。我们提议设立一个原住民伦理顾问体系,以此来落实新草案指南的核心思想,而不至于陷入这些指南明确力图避免的法律主义和墨守成规之中。