Farnbach Sara, Eades Anne-Marie, Hackett Maree Lisa
The George Institute for Global Health, PO Box M201, Missenden Road, Camperdown, New South Wales, Australia.
The University of Sydney, Sydney, New South Wales, Australia.
Syst Rev. 2015 Dec 30;4:189. doi: 10.1186/s13643-015-0180-6.
Research with a focus on Aboriginal and Torres Strait Islander Australian's (hereafter referred to as Indigenous(1)) needs is crucial to ensure culturally appropriate evidence-based strategies are developed to improve health. However, concerns surrounding this research exist, arising from some previous research lacking community consultation, resulting in little community benefit or infringing on important cultural values. Values and Ethics: Guidelines for Ethical conduct in Aboriginal and Torres Strait Islander Health Research (hereafter referred to as Values and Ethics), developed by The National Health and Medical Research Council of Australia in 2003, is the ethical standard for Indigenous-focused health research. Researchers must address its Values in research design and conduct. However, its impact on research processes is unclear. Local Protocols should also be considered. This review aims to systematically examine practices related to Values and Ethics, Local Protocols and the processes of conducting Indigenous-focused primary healthcare research in collaboration with external researchers.
The following electronic databases and grey literature will be searched (2003 to current): MEDLINE, EMBASE, CINAHL, Informit and HealthInfoNet--an Indigenous-specific research and program website. Indigenous-focused research will be included. Research must be conducted in one or more primary healthcare services, in collaboration with external researchers and with a focus on social and emotional well being. One reviewer will review titles and abstracts to remove obviously irrelevant research articles. Full-text research articles will be retrieved and independently examined by two reviewers. Data and quality assessment will be completed by one reviewer and verified by a second reviewer. Quality will be assessed using modified versions of established quality assessment tools.
This review will provide information on research processes and the impact of Values and Ethics on Indigenous-focused primary healthcare research, informing communities and primary healthcare staff around research practices, and researchers and policy makers of strengths and weaknesses of practice.
PROSPERO CRD42015024994.
专注于澳大利亚原住民和托雷斯海峡岛民（以下简称原住民(1)）需求的研究对于确保制定出符合文化特点的循证策略以改善健康状况至关重要。然而，围绕此类研究存在一些担忧，这源于之前的一些研究缺乏社区咨询，导致几乎没有给社区带来益处或侵犯了重要的文化价值观。价值观与伦理：澳大利亚国家卫生与医学研究委员会于2003年制定的《原住民和托雷斯海峡岛民健康研究伦理行为指南》（以下简称《价值观与伦理》）是专注于原住民健康研究的伦理标准。研究人员在研究设计和实施过程中必须遵循其价值观。然而，其对研究过程的影响尚不清楚。还应考虑当地协议。本综述旨在系统地研究与《价值观与伦理》、当地协议以及与外部研究人员合作开展专注于原住民的初级医疗保健研究过程相关的实践。
将检索以下电子数据库和灰色文献（2003年至今）：MEDLINE、EMBASE、CINAHL、Informit以及HealthInfoNet（一个专注于原住民的研究和项目网站）。将纳入专注于原住民的研究。研究必须在一个或多个初级医疗保健服务机构中进行，与外部研究人员合作，并关注社会和情感福祉。一名评审员将审查标题和摘要，以剔除明显不相关的研究文章。全文研究文章将被检索并由两名评审员独立审查。数据和质量评估将由一名评审员完成，并由另一名评审员进行核实。将使用既定质量评估工具的修改版本来评估质量。
本综述将提供有关研究过程以及《价值观与伦理》对专注于原住民的初级医疗保健研究的影响的信息，让社区和初级医疗保健人员了解研究实践，让研究人员和政策制定者了解实践的优势和不足。
PROSPERO CRD42015024994
