Planas M, Castellà M, García Luna P P, Parés R M, Chamorro J, Camarero E, Calañas A J, Bonada A, Irles J A, Adrio G, Jiménez M, Bobis M A, Rodríguez A, Pérez de la Cruz A, Gómez Enterría P, Zamarrón I, Cos A, Mancha A, Martínez I, Martí E, de Luis D, Virgili N, Moreno J M, Luengo L M, de la Cuerda C, Forga M T, Goenaga M A, Carrera J A, Garde C, Ordóñez J, Pedrón C
Unidad de Nutrición, Hospital Universitario Vall d'Hebrón, Passeig Vall d'Hebrón, 119-129, 08035 Barcelona.
Nutr Hosp. 2004 May-Jun;19(3):145-9.
The NADYA-SENPE Working Group analyzed the registered data of patients on Home Enteral Nutrition (HEN) in our country, during year 2001.
The data were collected through a closed questionnaire included on our web site (www.nadya-senpe.com). Apart from epidemiological information, the form includes the indication to prescribe this treatment, the specific nutritional treatment used and its duration, access path, complications and readmission rate in hospital, follow-up of the treatment, patient's quality of life and progress. All data were processed and analyzed by the coordinating team.
Twenty two hospitals participated and 3,458 patients, aged 5.6 +/- 4.0 y for those younger than 14 y, and 67.1 +/- 19.5 y for those older than 14 y, were enrolled. Of these patients, 43.4% were diagnosed with neurological diseases and 33.5% with cancer. The mean time on HEN was 6.5 +/- 4.5 months. Oral nutrition was the preferential route (54.5%), followed by nasoenteral tube (32.3%), and in 13.3% ostomy tubes were placed. Polymeric was the formula composition mainly used (85.9%). Patients were followed (71.1%) by the hospital reference Nutritional Support Unit. The complications related to nutrition included mainly the gastrointestinal (0.16 complications/patient), and the mechanical one (0.15 complications/patient). At the end for the year, 48.3% of the patients were in the HEN program, and in 33.3% HEN was finish due to different reasons. In 22.9% of the patients no, o light, discapacity degree was found.
Neurological diseases and cancer were the more frequent diagnoses in HEN patients. Oral access was the higher feeding route due, probably, to the high prevalence of cancer patients. In spite of the elevated prevalence of neurological diseases, a few number of patients, as previous years, were feed with ostomy tube. Due to the few complications observed, HEN is a safe treatment in our country.
NADYA - SENPE工作组分析了2001年我国接受家庭肠内营养（HEN）患者的注册数据。
数据通过我们网站（www.nadya - senpe.com）上的封闭式问卷收集。除了流行病学信息外，该表格还包括开具此治疗的指征、使用的具体营养治疗及其持续时间、接入途径、并发症和住院再入院率、治疗随访、患者生活质量和进展情况。所有数据均由协调团队进行处理和分析。
22家医院参与，纳入了3458例患者，14岁以下患者年龄为5.6±4.0岁，14岁以上患者年龄为67.1±19.5岁。在这些患者中，43.4%被诊断患有神经系统疾病，33.5%被诊断患有癌症。HEN的平均时间为6.5±4.5个月。口服营养是首选途径（54.5%），其次是鼻肠管（32.3%），13.3%的患者放置了造口管。主要使用的配方成分是聚合物配方（85.9%）。71.1%的患者由医院的营养支持参考科室进行随访。与营养相关的并发症主要包括胃肠道并发症（0.16例/患者）和机械性并发症（0.15例/患者）。到年底时，48.3%的患者仍在HEN项目中，33.3%的患者因不同原因结束了HEN治疗。22.9%的患者未发现或仅有轻度残疾。
神经系统疾病和癌症是HEN患者中较常见的诊断。口服途径是主要的喂养途径，这可能是由于癌症患者的高患病率所致。尽管神经系统疾病的患病率较高，但与前几年一样，使用造口管喂养的患者数量较少。由于观察到的并发症较少，HEN在我国是一种安全的治疗方法。
