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白癜风患者的管理及皮肤科医生对白癜风的态度。

Management of vitiligo patients and attitude of dermatologists towards vitiligo.

作者信息

Ongenae Katia, Van Geel Nanny, De Schepper Sofie, Vander Haeghen Yves, Naeyaert Jean-Marie

机构信息

Department of Dermatology, Ghent University Hospital, De Pintelaan 185, 9000 Gent, Belgium.

出版信息

Eur J Dermatol. 2004 May-Jun;14(3):177-81.

Abstract

As vitiligo does not cause any physical impairment, it is often considered unimportant by physicians. Vitiligo patients repeatedly experience disinterest from the medical world regarding their skin problem. A questionnaire survey was used to assess the management of vitiligo patients and the attitude of dermatologists towards vitiligo in Belgium. Vitiligo patients (n = 244) visiting an academic affiliated dermatology department were included and 454 out of 558 Belgian dermatologists returned a mailed questionnaire. Vitiligo patients do not often visit a doctor concerning their disease and do not often treat their disease. Disease severity as reported by the patient is correlated with the number of doctor visits (p = 0.001) but not to treatment of the disease. Information about the treatment and physician's encouragement to treat seem important in motivating patients to treat their vitiligo, but 50% of the patients were not adequately informed about their disease and its treatment during their first doctor visit. Today, nearly all the dermatologists report widely informing their patients, but only 36% of them encourage their patients to treat their disease, being pessimistic concerning expected treatment results. Interestingly, two thirds of the patients who ever treated their disease find it worthwhile.

摘要

由于白癜风不会导致任何身体损伤,医生通常认为它并不重要。白癜风患者屡屡感受到医学界对其皮肤问题的漠不关心。一项问卷调查被用于评估比利时白癜风患者的治疗情况以及皮肤科医生对白癜风的态度。纳入了前往一家学术附属医院皮肤科就诊的白癜风患者(n = 244),558名比利时皮肤科医生中有454人回复了邮寄的问卷。白癜风患者不常就其疾病看医生,也不常治疗其疾病。患者报告的疾病严重程度与看医生的次数相关(p = 0.001),但与疾病治疗无关。关于治疗的信息以及医生对治疗的鼓励在促使患者治疗白癜风方面似乎很重要,但50%的患者在首次看医生时未得到关于其疾病及其治疗的充分告知。如今,几乎所有皮肤科医生都报告说会广泛告知患者,但其中只有36%的医生鼓励患者治疗其疾病,他们对预期的治疗效果持悲观态度。有趣的是,曾经治疗过疾病的患者中有三分之二认为治疗是值得的。

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