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公共卫生研究中的伦理:保护人类受试者:社区咨询委员会的作用

Ethics in public health research: protecting human subjects: the role of community advisory boards.

作者信息

Quinn Sandra Crouse

机构信息

Graduate School of Public Health, University of Pittsburgh, 230 Parran Hall, 130 Desoto Street, Pittsburgh, PA 15261, USA.

出版信息

Am J Public Health. 2004 Jun;94(6):918-22. doi: 10.2105/ajph.94.6.918.

DOI:10.2105/ajph.94.6.918
PMID:15249289
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1448363/
Abstract

Increasingly, researchers grapple with meaningful efforts to involve communities in research, recognizing that communities are distinct from individuals. We also struggle to ensure that individual participants in research are fully protected. Community advisory boards (CABs) offer an opportunity to adopt a relationships paradigm that enables researchers to anticipate and address the context in which communities understand risks and benefits, and individuals give consent. CABs provide a mechanism for community consultation that contributes to protecting communities and fostering meaningful research. Furthermore, CABs can help us to re-create informed consent as a process. It is critical that we conduct research to understand the role of CABs in the informed consent process.

摘要

越来越多的研究人员致力于让社区参与研究的有意义的工作,他们认识到社区与个人不同。我们也在努力确保研究中的个体参与者得到充分保护。社区咨询委员会(CABs)提供了一个采用关系范式的机会,使研究人员能够预测并处理社区理解风险和利益以及个人给予同意的背景。CABs提供了一种社区协商机制,有助于保护社区并促进有意义的研究。此外,CABs可以帮助我们重新将知情同意构建为一个过程。我们开展研究以了解CABs在知情同意过程中的作用至关重要。

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