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隐私、私有化与赞助政治:深入中东医院体外受精隐秘世界的人种志挑战

Privacy, privatization, and the politics of patronage: ethnographic challenges to penetrating the secret world of Middle Eastern, hospital-based in vitro fertilization.

作者信息

Inhorn Marcia C

机构信息

Department of Health Behavior and Health Education, University of Michigan, School of Public Health, 1420 Washington Heights, Ann Arbor, MI 48109-2029, USA.

出版信息

Soc Sci Med. 2004 Nov;59(10):2095-108. doi: 10.1016/j.socscimed.2004.03.012.

Abstract

In recent years, in vitro fertilization (IVF) has spread around the globe, including to the Middle East. Privacy, privatization, and the politics of patronage are all key issues affecting anthropological research in Middle Eastern hospital-based IVF clinics. IVF-seeking patients generally desire privacy, even total secrecy, when pursuing these treatments, due to cultural issues of stigmatization, particularly regarding male infertility. Thus, ethical issues surrounding the informed consent process are of prime importance. Furthermore, privatization of medical services in the Middle East has left patients--and anthropologists--with few choices other than private IVF clinic settings in which to pursue treatment and research. Both the ethos of patient privacy and medical privatization affect the ability of anthropologists to "penetrate" the secret world of IVF. Permission to conduct ethnography in private hospital IVF clinics may be difficult to obtain without the help of highly motivated physician patrons, who are willing to recruit their private IVF patients for ethnographic interviewing. This article provides a personal account of some of these challenges as faced by a medical anthropologist during a 15-year career of hospital-based IVF research in the Middle East.

摘要

近年来,体外受精(IVF)已在全球范围内传播,包括中东地区。隐私、私有化以及赞助政治都是影响中东地区医院体外受精诊所人类学研究的关键问题。寻求体外受精治疗的患者在接受这些治疗时,由于存在耻辱感等文化问题,尤其是涉及男性不育时,通常希望保护隐私,甚至完全保密。因此,围绕知情同意过程的伦理问题至关重要。此外,中东地区医疗服务的私有化使得患者——以及人类学家——除了私立体外受精诊所外,几乎没有其他选择来接受治疗和进行研究。患者隐私的理念和医疗私有化都影响着人类学家“渗透”体外受精秘密世界的能力。如果没有积极主动的医生赞助者的帮助,很难获得在私立医院体外受精诊所进行人种志研究的许可,这些赞助者愿意招募他们的私立体外受精患者进行人种志访谈。本文讲述了一位医学人类学家在中东地区基于医院的体外受精研究长达15年的职业生涯中所面临的一些挑战。

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