Harper Ian
University of Edinburgh, Edinburgh, UK.
Soc Sci Med. 2007 Dec;65(11):2235-47. doi: 10.1016/j.socscimed.2007.08.007. Epub 2007 Sep 25.
Conducting anthropological research into situations where public health interventions are ongoing raises a number of complex ethical issues. This paper addresses this by focusing on recent debate around questions of informed consent in research situations into health care in the 'developing' world. Two issues are developed: firstly, that of anthropological engagement with medical research trials; and secondly, how medical ethics debates have impinged upon and influenced anthropological ideas of ethics. Drawing on personal anthropological research into the implementation of the WHO prescribed tuberculosis control programme (DOTS) in the context of Nepal, I outline a number of ethical dilemmas and issues that arose. This research context included other ongoing research into DOTS implementation, as well as the local culture of health care provision. It involved moving between a number of sites and subject positions while interacting with heath professionals and patients. In conclusion, rather than prescribing ethical norms for researchers in such situations, I argue that we need more ethnographic examples and case studies as a means of thinking through the issues. I suggest that we need to reflect on both the ethical issues that arise when undertaking research into multifaceted public health interventions and into the situations where ethical guidelines and stipulations are formulated. The best place for this may be the Internet, where we increasingly see the conditions emerging for open dialogue.
对正在进行公共卫生干预的情况开展人类学研究引发了诸多复杂的伦理问题。本文通过聚焦近期围绕“发展中”世界医疗保健研究中知情同意问题的辩论来探讨这一现象。文中阐述了两个问题:其一,人类学与医学研究试验的关联;其二,医学伦理辩论如何影响并塑造了人类学的伦理观念。基于本人在尼泊尔背景下对世界卫生组织规定的结核病控制项目(直接督导下的短程化疗,DOTS)实施情况的人类学研究,我概述了所出现的一些伦理困境和问题。这一研究背景涵盖了其他正在进行的关于DOTS实施情况的研究,以及当地的医疗保健文化。研究涉及在多个场所和主体立场间转换,同时与医疗专业人员和患者进行互动。总之,我认为在此类情况下,与其为研究人员规定伦理规范,不如需要更多的民族志实例和案例研究作为思考这些问题的方式。我建议我们既要反思在对多方面公共卫生干预措施进行研究时出现的伦理问题,也要反思制定伦理准则和规定的情况。实现这一点的最佳场所或许是互联网,在那里我们越来越多地看到进行公开对话的条件正在形成。