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在线互动。互联网乳腺癌支持小组中讲故事的效果。

Online interaction. Effects of storytelling in an internet breast cancer support group.

作者信息

Høybye Mette Terp, Johansen Christoffer, Tjørnhøj-Thomsen Tine

机构信息

Department of Psychosocial Cancer Research, Institute of Cancer Epidemiology, Danish Cancer Society, Copenhagen, Denmark.

出版信息

Psychooncology. 2005 Mar;14(3):211-20. doi: 10.1002/pon.837.

Abstract

The internet provides new ways of forming social relationships among people with breast cancer and is increasingly used for this purpose. This qualitative study, using ethnographic case-study method, aimed to explore how support groups on the internet can break the social isolation that follows cancer and chronic pain, by analysing the storytelling emerging on the Scandinavian Breast Cancer Mailing list. Using participant observation and face-to-face or online interviews of participants, we investigated the motivations of 15 women who chose the internet to counteract social isolation after breast cancer. The results showed that the women were empowered by the exchanges of knowledge and experience within the support group. The internet was considered a means for finding ways of living with breast cancer. Our study suggests that internet support groups have important potential for the rehabilitation of cancer patients.

摘要

互联网为乳腺癌患者之间建立社会关系提供了新途径,并且越来越多地被用于这一目的。这项定性研究采用人种志案例研究方法,旨在通过分析斯堪的纳维亚乳腺癌邮件列表上出现的故事讲述,探讨互联网上的支持小组如何打破癌症和慢性疼痛带来的社会孤立。通过参与观察以及对参与者进行面对面或在线访谈,我们调查了15名选择互联网来对抗乳腺癌后社会孤立的女性的动机。结果表明,这些女性在支持小组内的知识和经验交流中获得了力量。互联网被视为找到与乳腺癌共存方式的一种手段。我们的研究表明,互联网支持小组对癌症患者的康复具有重要潜力。

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