应对方式和家庭功能可预测儿童癌症患者兄弟姐妹的纵向心理适应情况。
Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients.
作者信息
Houtzager Bregje A, Oort Frans J, Hoekstra-Weebers Josette E H M, Caron Huib N, Grootenhuis Martha A, Last Bob F
机构信息
Pediatric Psychosocial Department, Academic Medical Center, University of Amsterdam.
出版信息
J Pediatr Psychol. 2004 Dec;29(8):591-605. doi: 10.1093/jpepsy/jsh061.
OBJECTIVE
To assess associations of coping and family functioning with psychosocial adjustment in siblings of pediatric cancer patients at 1, 6, 12, and 24 months after diagnosis.
METHODS
Eighty-three siblings (ages 7-19 years) participated. Effects on anxiety, quality of life, behavioral-emotional problems, and emotional reactions to the illness were investigated. Data-analysis was performed with multilevel mixed modeling.
RESULTS
Psychosocial functioning was impaired at 1 month but ameliorated over time. Adjustment problems were associated with high family adaptation and cohesion, older age, and female gender. Lower anxiety, insecurity, loneliness, and illness involvement were related to siblings' ability to remain optimistic. Insecurity and illness involvement were positively related to reliance on the medical specialist and a tendency to seek information about the illness.
CONCLUSIONS
Siblings of pediatric cancer patients are most affected by the illness in the first months. Children at risk may be identified according to sibling age and gender and according to long-term family adaptation processes and sibling coping abilities.
目的
评估小儿癌症患者的兄弟姐妹在诊断后1个月、6个月、12个月和24个月时应对方式和家庭功能与心理社会适应的相关性。
方法
83名兄弟姐妹（年龄7 - 19岁）参与研究。调查了对焦虑、生活质量、行为 - 情绪问题以及对疾病的情绪反应的影响。采用多水平混合模型进行数据分析。
结果
心理社会功能在1个月时受损，但随时间改善。适应问题与较高的家庭适应性和凝聚力、年龄较大以及女性性别相关。较低的焦虑、不安全感、孤独感和对疾病的卷入程度与兄弟姐妹保持乐观的能力有关。不安全感和对疾病的卷入程度与对医学专家的依赖以及寻求疾病信息的倾向呈正相关。
结论
小儿癌症患者的兄弟姐妹在最初几个月受疾病影响最大。可根据兄弟姐妹的年龄和性别以及长期的家庭适应过程和兄弟姐妹的应对能力来识别有风险的儿童。
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