Gélinas-Gagné Charlotte, D'Amico Miranda
Department of Education, Concordia University, Montréal, QC.
Can Oncol Nurs J. 2024 Apr 1;34(2):196-204. doi: 10.5737/23688076342196. eCollection 2024 Spring.
This study investigates the support systems and needs of siblings of young people with cancer, shedding light on the emotional and informational challenges siblings face. This topic area has had relatively little attention.
Qualitative interviews were conducted, and thematic analysis was employed to gain in-depth insights into the experiences and perspectives of siblings. While the study's relatively small sample size and participant homogeneity are acknowledged limitations, the approach offers several strengths, including relevance and participant diversity across age cohorts.
The findings underscore the essential role of healthcare professionals, particularly nurses, in providing emotional and informational support to siblings. Family-centred care, psychosocial support, tailored interventions, and ongoing research and education are recommended to address the unique needs of siblings effectively.
Overall, this study highlights the importance of recognizing and addressing the support needs of siblings in pediatric oncology care, emphasizing their role as a vital component of the family system and advocating for holistic support throughout the cancer journey and beyond.
本研究调查了患癌青少年兄弟姐妹的支持系统和需求,揭示了他们所面临的情感和信息方面的挑战。这一主题领域相对较少受到关注。
进行了定性访谈,并采用主题分析以深入了解兄弟姐妹的经历和观点。虽然承认该研究相对较小的样本量和参与者同质性是局限性,但这种方法具有若干优势,包括相关性以及不同年龄组参与者的多样性。
研究结果强调了医疗保健专业人员,尤其是护士,在为兄弟姐妹提供情感和信息支持方面的重要作用。建议采用以家庭为中心的护理、心理社会支持、量身定制的干预措施以及持续的研究和教育,以有效满足兄弟姐妹的独特需求。
总体而言,本研究强调了在儿科肿瘤护理中认识并满足兄弟姐妹支持需求的重要性,强调他们作为家庭系统重要组成部分的作用,并倡导在整个癌症治疗过程及之后提供全面支持。