van Exel N J A, Koopmanschap M A, van den Berg B, Brouwer W B F, van den Bos G A M
Institute for Medical Technology Assessment, Rotterdam, The Netherlands.
Cerebrovasc Dis. 2005;19(1):11-7. doi: 10.1159/000081906. Epub 2004 Nov 3.
We assessed the objective and subjective burden of caregiving for stroke patients and investigated which characteristics of the patient, the informal caregiver and the objective burden contribute most to subjective burden and to the condition of feeling substantially burdened.
We studied a sample of 151 stroke survivors and their primary informal caregivers. We collected data through patient and caregiver interviews 6 months after stroke.
Both the level of subjective burden and the condition of feeling substantially burdened were associated with both caregiver's and patient's health-related quality of life, patient's age, and the number of caregiving tasks performed.
These conditions can be used in clinical practice to identify potentially vulnerable caregivers in need of support and at risk of adverse health effects. Monitoring stroke survivors as well as their family caregivers at discharge may help to prevent or alleviate caregiver burden.
我们评估了中风患者的客观和主观护理负担，并调查了患者、非正式护理人员的哪些特征以及客观负担对主观负担和深感负担状况的影响最大。
我们研究了151名中风幸存者及其主要非正式护理人员的样本。我们在中风后6个月通过患者和护理人员访谈收集数据。
主观负担水平和深感负担状况均与护理人员和患者的健康相关生活质量、患者年龄以及执行的护理任务数量有关。
这些情况可用于临床实践，以识别可能需要支持且有健康不良影响风险的弱势护理人员。在出院时对中风幸存者及其家庭护理人员进行监测可能有助于预防或减轻护理负担。
