Cicutto Lisa, Brooks Dina, Henderson Katy
Faculty of Nursing, University of Toronto, 50 St. George Street, Toronto, Ont., Canada M5S 3H4.
Patient Educ Couns. 2004 Nov;55(2):168-76. doi: 10.1016/j.pec.2003.08.012.
This study explored factors that influence self-care from the perspective of individuals with Chronic Obstructive Pulmonary Disease (COPD). Seven focus groups were held with individuals who had physician diagnosed COPD and experienced daily symptoms that limited activities. Forty-two subjects participated in the study. All sessions were audiotaped, transcribed and coded independently. The main theme identified was surviving COPD: the context for living and the two sub-themes identified were adjusting physically and emotionally to COPD. Participants discussed their self-care practices within the context of the purpose and meaning of life. Although participants experienced major physical limitations, the issues highlighted were those of individuals striving to survive with COPD and to hold on to some quality of life through adjusting physically and emotionally. Individuals with COPD have developed strategies to adapt to the disease, compensate for limitations, and integrate self-care activities for managing COPD into their daily routine. Health professionals should use approaches that support the whole needs of the individual to achieve the best quality of life for individuals with COPD and their families.
本研究从慢性阻塞性肺疾病（COPD）患者的角度探讨了影响自我护理的因素。对七组经医生诊断患有COPD且日常症状限制活动的患者进行了访谈。42名受试者参与了该研究。所有访谈均进行了录音、转录并独立编码。确定的主要主题是与慢性阻塞性肺疾病共存：生活背景，确定的两个子主题是在身体和情感上适应慢性阻塞性肺疾病。参与者在生活目的和意义的背景下讨论了他们的自我护理做法。尽管参与者经历了严重的身体限制，但突出的问题是那些努力与慢性阻塞性肺疾病共存并通过在身体和情感上进行调整来维持一定生活质量的个人所面临的问题。慢性阻塞性肺疾病患者已经制定了适应疾病、弥补限制以及将管理慢性阻塞性肺疾病的自我护理活动融入日常生活的策略。卫生专业人员应采用支持个人整体需求的方法，以实现慢性阻塞性肺疾病患者及其家庭的最佳生活质量。
