Kanervisto Merja, Paavilainen Eija, Heikkilä Johanna
Department of Nursing Science, University of Tampere, Etelä-Pohjanmaa Hospital District, Tampere, Finland.
J Clin Nurs. 2007 Aug;16(8):1498-505. doi: 10.1111/j.1365-2702.2006.01804.x.
The purpose of this study was to describe family dynamics in families with severe chronic obstructive pulmonary disease (COPD) on the basis of Barnhill's framework for healthy family systems. The sample consisted of 35 severe COPD patients and 30 family members at Tampere University Hospital, Finland or in the neighbouring regions.
Chronic obstructive pulmonary disease is a public health problem worldwide. It is a slowly progressive airway disease, producing a decline in lung function which is not fully reversible.
The sample included the families of patients without oxygen therapy and the families of patients who had long-term oxygen therapy (LTOT). The data were collected using the Family Dynamics Measure 2 (FDM2) and the Family Dynamics Questionnaire (FDQ).
A quantitative research method was employed in the study. Frequency and percentage distributions, as well as cross-tabulations, were used to describe the data. Mean values and standard deviations were calculated for the sum variables of six dimensions of the FDM2.
In the dimensions of individuation, mutuality and flexibility, dynamics in the families of patients with LTOT was significantly better than of the patients without oxygen therapy. Especially in the dimension of mutuality, the families of LTOT patients functioned very well, while in the dimensions of communication and roles, family dynamics in these families was notably worse, although still good.
Poor self-identity--enmeshment, isolation from others and lack of flexibility to varying conditions--in families with severe COPD can weaken the ability of the families to manage in everyday life.
Families need family nursing to adapt to alterations occurring when a family member has severe COPD. Nurses can give support and help for these families for their roles of patient and caregiver, as well as opportunities to speak with someone about their situation.
本研究旨在基于巴恩希尔健康家庭系统框架,描述重度慢性阻塞性肺疾病(COPD)患者家庭的家庭动态。样本包括芬兰坦佩雷大学医院或周边地区的35名重度COPD患者及其30名家庭成员。
慢性阻塞性肺疾病是一个全球性的公共卫生问题。它是一种缓慢进展的气道疾病,会导致肺功能下降且这种下降不完全可逆。
样本包括未接受氧疗患者的家庭和接受长期氧疗(LTOT)患者的家庭。数据通过家庭动态测量量表2(FDM2)和家庭动态问卷(FDQ)收集。
本研究采用定量研究方法。使用频率和百分比分布以及交叉表来描述数据。计算FDM2六个维度的总和变量的均值和标准差。
在个性化、相互性和灵活性维度上,LTOT患者家庭的动态明显优于未接受氧疗患者的家庭。特别是在相互性维度上,LTOT患者家庭功能良好,而在沟通和角色维度上,这些家庭的家庭动态明显较差,尽管仍属良好。
重度COPD患者家庭中自我认同差——相互纠缠、与他人隔离以及缺乏适应不同情况的灵活性——会削弱家庭在日常生活中的管理能力。
家庭需要家庭护理来适应家庭成员患有重度COPD时发生的变化。护士可以为这些家庭在患者和照顾者角色方面提供支持和帮助,以及给予他们与他人谈论自身情况的机会。